Department of Gender and Women?s Health Family and Community Health World Health Organization Avenue Appia 20 CH-1211 Geneva 27 Switzerland E-mail: genderandhealth@who.int http://www.who.int/gender/ ISBN 92 4 159039 4 Integrating Gender into HIV/AIDS Programmes a review paper World Health Organization Integrating Gender into HIV/AIDSProgrammesAReview Paper World Health Organization Integrating Gender into HIV/AIDS Programmes a review paper Department of Gender and Women?s Health Family and Community Health World Health Organization Integrating Gender into HIV/AIDS Programmes ? World Health Organization 2003 All rights reserved. Publications of the World Health Organization can be obtained from Marketing and Dissemination, World Health Organization, 20 Avenue Appia, 1211 Geneva 27, Switzerland (tel: +41 22 791 2476; fax: +41 22 791 4857; email: bookorders@who.int). Requests for permission to reproduce or translate WHO publications - whether for sale or for noncommercial distribution - should be addressed to Publications, at the above address (fax: +41 22 791 4806; email: permissions@who.int). The designations employed and the presentation of the material in this publication do not imply the expression of any opinion whatsoever on the part of the World Health Organization concerning the legal status of any country, territory, city or area or of its authorities, or concerning the delimitation of its frontiers or boundaries. The mention of specific companies or of certain manufacturers' products does not imply that they are endorsed or recommended by the World Health Organization in preference to others of a similar nature that are not mentioned. Errors and omissions excepted, the names of proprietary products are distinguished by initial capital letters. The World Health Organization does not warrant that the information contained in this publication is complete and correct and shall not be liable for any damages incurred as a result of its use. The named authors alone are responsible for the views expressed in this publication. Acknowledgements This publication was prepared for WHO by Dr Geeta Rao Gupta, Mr Daniel Whelan and Ms Keera Allendorf of the International Center for Research on Women (ICRW) in Washington, D.C. It benefited from the discussion and input from participants at the Expert Consultation meeting on Integrating Gender into HIV/AIDS programmes, held in Geneva from 3-5 June 2002: Dr Quarraisha Abdool Karim, Dr Amel Ben Said, Dr Mabel Blanco, Ms Elaine Chase Pevsner, Dr Raquel Child Goldenburg, Dr Suneeta Dhar, Dr Yitades Gebro, Dr Janet Gruber von Kerenshazy, Mr Juan Carlos Hernandez, Dr Josephine Kibaru, Dr Julia Kim, Dr Esteban A. Loy, Ms Marina Mahathir, Dr Suzanne Maman, Dr Ann McCauley, Ms Inviolata Mmbwavi, Dr Velepi C. Mtonga, Ms Betty Nabirye, Dr Borworn Ngamsiriudom, Dr Marina Nikitina, Dr Alena Peryshkina, Dr Alusio Segurado, Dr Suniti Solomon, Dr Sally Theobald, Dr Khuat Thu Hong, Dr Ana Lucia Vasconcelos, Dr Kwaku Yeboah, Dr Teerawattanon Yot and Dr Najma Yousouf Ali. It also benefited from extensive review by several people in the Departments of Gender and Women's Health (GWH) and HIV/AIDS of WHO, particularly Dr Claudia Garcia-Moreno, GWH and Dr Isabelle de Zoysa (HIV/AIDS). WHO Library Cataloguing-in-Publication Data 1. HIV infection - prevention and control 2. Acquired immunodeficiency syndrome - prevention and control 3. Sex factors 4. Women 5. Socioeconomic factors 6. Gender identity 7. Social justice I. Rao Gupta, Geeta. II. Whelan, Daniel. III. Allendorf, Keera. ISBN 92 4 159039 4 (NLM classification: WC 503.71) Printed in Switzerland. Ms Carla Salas-Rojas in GWH was responsible for design and layout. CONTENTS 1.EXECUTIVE SUMMARY 5 2.BACKGROUND AND RATIONALE 7 3.THE IMPACT OF GENDER ON THE HIV/AIDS PANDEMIC 9 3.1 THE ROLE OF GENDER AND SEXUALITY IN DETERMINING VULNERABILITY 10 3.2 SOCIOCULTURAL FACTORS: NORMS OF MASCULINITY AND FEMININITY 10 3.3 ECONOMIC FACTORS: POVERTY AND DEPENDENCY 17 3.4 THE SPECIAL VULNERABILITIES OF ADOLESCENTS AND YOUTH 22 4.INTEGRATING GENDER INTO HIV/AIDS PROGRAMMING AND POLICIES 26 4.1 TECHNICAL APPROACHES FOR GENDER INTEGRATION 27 4.1.1 ?DO NO HARM? 27 4.1.2 ?GENDER SENSITIVE? PROGRAMMES 31 4.1.3 ?TRANSFORMATIVE? INTERVENTIONS 33 4.1.4 INTERVENTIONS THAT EMPOWER 38 4.2 STRUCTURAL ELEMENTS FOR GENDER INTEGRATION 41 5.THE CHALLENGES THAT LIE AHEAD 44 6.CONCLUSION 46 7.REFERENCES 47 5 Integrating Gender into HIV/AIDSProgrammes In the HIV/AIDS epidemic,gender ? defined as the norms, customs and practices that define ?masculine? and ?fem- inine? attributes and behaviours ? plays an integral role in deter- mining an individual?s vulnera- bility to infection, his or her ability to access care, support or treatment, and the ability to cope when infected or affected. Gender norms, for example, often dictate that women and girls should be ignorant and passive about sex, which greatly constrains their ability to negoti- ate safer sex or access appropri- ate services. Similarly, gender norms cast women as being pri- marily responsible for reproduc- tive and productive activities within the home, in sharp con- trast to men who are cast as pri- mary economic actors and pro- ducers outside the home. Such gender stereotypes account for women having much less access than men to key productive resources such as education, land, income, credit, and employment, which significantly reduces the leverage they have in negotiating protection with their partners and greatly affects their ability to cope with the impact of infection. For men and boys, gender norms create social pressure to take risks, be self- reliant, and prove their man- hood by having sex with multi- ple partners. Such norms expose men and boys to the risk of infection and create barriers to their use of HIV/AIDS preven- tion, care, or support services. Youth, especially girls, are par- ticularly vulnerable in the epi- demic. Furthermore, research indicates that even gender norms which supposedly protect youth, such as those that expect unmarried girls to remain vir- gins, can put them at risk by restricting their access to full information about sexuality and reproductive health services. While our collective stock of knowledge about the gender- related determinants of risk and vulnerability to HIV and the con- sequences of AIDS has grown substantially over the past decade, putting that knowledge to good practice has proved to be a formidable challenge. A framework that categorizes the different approaches to inte- grating gender into HIV/AIDS programming can be useful to meet this challenge. Reviewing existing approaches to address gender in HIV/AIDS programmes suggests that there is a continuum of approaches that have been used ranging from harmful to empowering. Interventions can cause harm by 1. Executive Summary 1. Executive Summary reinforcing damaging gender and sexual stereotypes that perpetu- ate the epidemic either directly or indirectly. To be useful, inter- ventions must, at a minimum, do no harm. A step up on the continuum are gender-sensitive interventions that recognize that men and women?s needs often differ and find ways to meet those needs differentially. The third, gender-transformative interventions are a more sophis- ticated set of approaches that not only recognize and address gender differences but go a step further by creating the condi- tions whereby women and men can examine the damaging aspects of gender norms and experiment with new behaviours to create more equitable roles and relationships. Finally, the most evolved set of interventions are structural interventions that go beyond health interventions to reduce gender inequalities by empowering women and girls. By increasing their access to economic and social resources, such interventions can funda- mentally change the economic and social dynamic of gender roles and relationships, and in the long term protect women as well as men and families in the HIV/AIDS epidemic. The challenge of integrating existing knowledge about the impact of gender norms and inequality on HIV/AIDS into interventions, while formidable, can be met. There are several examples of programmes from around the world that have adopted different approaches to integrate gender considerations in their work. It is important to draw upon the lessons learned from these implementation expe- riences to develop concrete and practical guidelines for national HIV/AIDS programme managers so as to help them integrate gen- der issues into HIV/AIDS pro- grammes. The need for such guidelines is underscored by a single fact: the effectiveness of HIV/AIDS programmes and poli- cies is greatly enhanced when gender differences are acknowl- edged, the gender-specific con- cerns and needs of women and men are addressed, and gender inequalities are reduced. 6 Integrating Gender into HIV/AIDSProgrammes The global pandemic ofHIV/AIDS has now Research conducted over the past decade has revealed that gender roles and relations directly and indirectly influence the level of an individual?s risk and vulnerability to HIV infec- tion. Gender is also a factor in determining the level and quali- ty of care, treatment, and sup- port that HIV-positive men and women receive, the burden of care taken on largely by women, and the negative eco- nomic and social consequences of AIDS. These realities demon- strate the necessity of compre- hensively integrating gender considerations into all levels of HIV/AIDS programming in order to enhance our response to the pandemic. Integration will not only benefit women and girls ? who are often the most vulnerable ? but men and boys who also experience gender- related risks and vulnerabilities to HIV/AIDS. a178 While some programme managers and policy makers who design and implement HIV/AIDS prevention, care and treatment programmes rec- ognize the central importance of addressing gender, this recognition is far from universal or even widespread. The depth and breadth of our knowledge about gender-related determi- nants, barriers and impacts of HIV/AIDS has grown signifi- cantly over the past decade, but this knowledge continues to outpace our ability to know precisely how we should respond programmatically to these issues in a comprehen- sive manner. a178 In 1999, the Joint United Nations Programme on HIV/AIDS (UNAIDS) published a technical paper entitled Taking Stock of Research and Programmes on Gender and HIV/AIDS. The paper reviewed research on gender-related determinants of risk and vul- nerability to HIV infection among men and women and the differential impacts men and women experience as a result of actual illness, access- ing treatments, or seeking and receiving care and social sup- port. The review also examined programmatic activities that attempted to address gender dimensions in prevention, care, treatment and social support. The findings demonstrated that although limited in scale, HIV/AIDS programmes that address gender equality as a central goal maximize their overall effectiveness. a178 In order to update and build upon the UNAIDS effort, 2. Background & Rationale 2. Background & Rationale 7 Integrating Gender into HIV/AIDSProgrammes 8 Integrating Gender into HIV/AIDSProgrammes the World Health Organization (WHO) has identified the need to develop a set of guidelines to help national level HIV/AIDS programme planners and man- agers integrate gender-based issues and needs comprehen- sively within HIV/AIDS policies and programmes. These guide- lines are intended to go beyond the ?what? and the ?why? to the ?how? by providing a comprehen- sive framework for addressing gender in our response to the HIV/AIDS epidemic. a178 To initiate the drafting of the guidelines, WHO held an Expert Consultation in Geneva in June 2002. This Consultation brought together experts from the fields of HIV/AIDS, gender, health and development, as well as programme managers who implement HIV/AIDS pro- grammes at the national level. Participants at the Consultation reviewed existing types of HIV/AIDS interventions ? volun- tary counselling and testing pro- grammes (VCT); efforts to reduce the incidence of mother- to-child-transmission of HIV (MTCT); care, treatment and support programmes; and pro- grammes to address the needs and vulnerabilities of adoles- cents and youth ? for the pur- pose of suggesting a set of rec- ommendations and guidelines to address gender effectively within those programmes and interven- tions. The Guidelines are meant primarily for HIV/AIDS pro- gramme managers in WHO country offices and within national Ministries of Health. They might also be useful for non-governmental organizations (NGOs) that are involved in advocacy, research and service provision. While these specific types of interventions provide key opportunities for the incor- poration of gender issues, they are by no means exhaustive. The principles and approaches discussed here can equally be applied to other important inter- vention areas, such as condom promotion and mass communi- cation strategies. a178 This Review Paper aimed to provide participants of the Expert Consultation with back- ground information and a sug- gested framework for consider- ing the issues and challenges of integrating gender into program- matic and policy action. It also offers some programmatic exam- ples of successful HIV/AIDS interventions that have addressed gender issues in a meaningful and significant way. This Review Paper is not intended to be an exhaustive review of literature on gender and HIV/AIDS, but rather to draw from the literature to cre- ate a picture, in broad strokes, of the ways in which gender influences women?s and men?s vulnerability in the epidemic and the range of potential pro- grammatic responses. 9 Integrating Gender into HIV/AIDSProgrammes Epidemiological and bio-medical research has between an individual?s sex and his or her risk of HIV infection. It is well known, for example, that physiological factors account for the more efficient transmission of infection from an infected man to a woman than from an infected woman to a man(WHO 1994; Foundation for Women 1997). More recent- ly, however, research has also identified the role that gender plays in determining individual risk and vulnerability in the HIV/AIDS epidemic. Socio-cul- tural norms about masculinity and femininity, and the unequal power relations between men and women that arise from those norms, con- spire with biological and physi- ological factors to compound individuals? risk of infection, resulting in epidemics of signifi- cant size and proportion in dif- ferent parts of the world. a178 Whereas ?sex? defines the biological distinction between women and men, ?gender? is a social construct that differenti- ates the power, roles, responsi- bilities, and obligations of women from that of men in society. Gender determines to a great extent how we think, how we feel, and what we believe we can and cannot do as women and men. Gender roles, norms and expectations vary over the life cycle of women and men, and vary within and between cultures. a178 In the HIV/AIDS epidem- ic, both a person?s sex and gen- der determine the extent to which he or she will be vulnera- ble to infection and his or her ability to access available treat- ments. Additionally, gender inequality influences the extent to which an individual will be able to cope with the burden of infection and illness, caring for a family member, or surviving the death of family members, both economically and socially. a178 Gender is a culture-spe- cific construct. As a result there are significant differences in what women and men can or cannot do in one culture as compared to another. But what is fairly consistent across cul- tures is that there is always a distinct difference between women?s and men?s roles, access to productive resources, and decision-making authority. Typically, men are expected to be responsible for the pro- 3. The Impact of Gender on the HIV/AIDS Pandemic 3. The Impact of Gender on the HIV/AIDS Pandemic 10 Integrating Gender into HIV/AIDSProgrammes ductive activities outside the home while women are expect- ed to be responsible for the reproductive and productive activities within the home. In addition, in almost every coun- try worldwide women have less access to and control of pro- ductive resources than men, creating an unequal balance of power that favors men. Gender gaps between women and men in literacy, school enrollment, labor force participation, land ownership, and access to credit testify to this imbalance in power (UNIFEM 2000). 3.1 The Role of Gender and Sexuality in Determining Vulnerability a178 The imbalance in power created by a differential access to productive resources trans- lates into an unequal balance of power in sexual interactions in which the satisfaction of male pleasure is more likely to supersede that of female pleas- ure, and where men have greater control over their sexu- ality. Sexuality is the social construction of a biological drive. An individual?s sexuality is defined by whom one has sex with, in what ways, why, under what circumstances, and with what outcomes. It is a multidi- mensional and dynamic con- struct. Explicit and implicit rules imposed by society, as defined by gender and age pro- foundly influence an individ- ual?s sexuality (Dixon-Mueller 1993; Zeidenstein and Moore 1996; Parker and Aggleton 1999). a178 The balance of power in any sexual interaction deter- mines its outcome. In the worst cases, this power imbalance plays itself out in terms of vio- lence against women. An understanding of individual sexual behaviour or sexual risk thus necessitates an understand- ing of gender and sexuality as constructed by a complex inter- play of sociocultural and eco- nomic forces that determine the distribution of power. 3.2 Sociocultural Factors: Norms of Masculinity and Femininity a178 Gender norms that create an unequal balance of power between women and men are deeply rooted in the sociocultu- ral context of each society and are enforced by that society?s institutions, such as schools, workplaces, families, and health systems (Wingood and 11 Integrating Gender into HIV/AIDSProgrammes DiClemente 2000). By defining the societal ideals of feminine and masculine behaviour and sexuality, gender norms greatly affect women?s and men?s access to information and serv- ices, their sexual behaviour and attitudes, and how they cope with illness once infected or affected. This section provides an overview of the different ways in which cultural pre- scriptions for masculinity and male sexuality and femininity and female sexuality influence both women?s and men?s vul- nerability in the HIV/AIDS epi- demic by affecting what women and men know, their sexual communication and behaviour within relationships, and their ability to access resources and services when infected or affect- ed by HIV/AIDS. a178 The dominant ideology of femininity in most societies casts women in a subordinate, dependent, and passive position with virginity, chastity, mother- hood, moral superiority, and obedience as key virtues of the ideal woman. In terms of HIV/AIDS, this ideology often assigns to women particular roles (as vectors of disease or merely as bearers of unborn children) that substantially influence the design of HIV/AIDS interventions that are ultimately harmful and counterproductive. In sharp contrast, the dominant ideology of masculinity characterizes men as independent, dominant, invulnerable aggressors and providers, whose key virtues are strength, virility and courage. a178 It is important to remem- ber, however, that in every soci- ety there are many kinds of masculinity and femininity that vary by social class, ethnicity, sexuality, and age. It is also now recognized that the multi- ple forms of masculinity and femininity are dynamic, subject to change, constructed through social interaction (Gutmann 1996; Rivers and Aggleton 2001). This more nuanced understanding of masculinity and femininity is very useful in terms of HIV prevention because it implies that modifi- cations in the construction of gender identities may be possi- ble over time and that there are alternate forms of gender iden- tities that can serve as models for promoting more equitable gender relationships and safer sex. a178 Despite the existence of multiple masculinities and fem- ininities, however, it is the dominant ideology that most greatly influences women?s and men?s attitudes and behaviour, making both women and men more vulnerable in the HIV/AIDS epidemic. Some of the ways in which the domi- nant and damaging ideologies of masculinity and femininity manifest and influence women?s 12 Integrating Gender into HIV/AIDSProgrammes and men?s vulnerabilities are described below. a178 Knowledge of Sex and HIV Risk: In many societies the dominant ideology of femininity dictates that ?good women? are expected to be ignorant about sex and passive in sexual inter- actions (Rao Gupta and Weiss 1993; Paiva 1993). A recent analysis of levels of knowledge about HIV/AIDS prevention in 23 developing countries found that levels of knowledge are almost always higher among men than among women, with 75% of men, on average, having accurate knowledge about HIV/AIDS transmission and prevention as compared to roughly 65% of women (Gwatkin and Deveshwar-Bahl 2001). This knowledge imbal- ance greatly hinders women?s ability to be informed about risk reduction. a178 Some studies have shown that a lack of knowledge or incomplete knowledge also fos- ters the development of fears and myths about condom use. For example, studies conducted in diverse settings ? Brazil, Guatemala, India, Jamaica, Mauritius and South Africa ? have found that women did not like using condoms because they feared that if the condom fell off inside the vagina it could get lost or travel to the throat, or that a woman?s reproductive organs would come out when the condom was removed (Rao Gupta and Weiss 1993). Even when a woman is informed or has accurate information about sex and HIV prevention, the societal expectation that a woman, particularly a young woman, should be na?ve makes it difficult for her to be proac- tive in negotiating safer sex. a178 Simultaneously, prevail- ing norms of masculinity expect men to be more knowledgeable and experienced about sex. This assumption puts men ? par- ticularly young men ? at risk of infection because such norms prevent them from seeking information or admitting their lack of knowledge about sex or protection. Many men, as a result, have erroneous informa- tion about sexual and repro- ductive health (Barker and Lowenstein 1997; UNAIDS 1999). a178 Fidelity versus Multiple Partnerships: In many societies the dominant ideal of femininity emphasizes uncompromising loyalty and fidelity in partner- ships. It is this ideal that dis- tinguishes a ?good? woman from a ?woman of the street? and defines sexual practices linked to reproduction as moral and those that are linked to pleas- ure as immoral (Rao Gupta and Weiss 1993). a178 In sharp contrast, in many societies it is believed 13 Integrating Gender into HIV/AIDSProgrammes that variety in sexual partners is essential to men?s nature as men and that men will inevitably seek multiple part- ners for sexual release (Mane, Rao Gupta et al. 1994; Weiss, Whelan et al. 1996; Rao Gupta 2000). Results from sexual behaviour studies from around the world indicate that hetero- sexual men, both married and single, as well as homosexual and bisexual men, have higher reported rates of partner change than women (Sittitrai 1991; Orubuloye, Caldwell et al. 1993; Rao Gupta and Weiss 1993). Recognition and condon- ing of multiple sexual partner- ships for men but not for women sets a double standard for sexual behaviour that seri- ously challenges the effective- ness of HIV prevention efforts that expect men to be faithful and reduce the number of sex- ual partners (Rao Gupta 2000). Moreover, breakdowns in men?s ability to meet some masculine norms, such as providing for the family, can result in men seeking self-esteem by fulfilling other masculine norms, such as engaging in sex with multi- ple partners (Silberschmidt 2001). This underscores the need for HIV/AIDS prevention efforts to change the gendered norms of sexuality, if interven- tions are to be effective. a178 Motherhood as the Ideal: Being a mother is con- sidered to be a feminine ideal in many cultures. Children pro- vide a social identity for many women and guarantee them some status in kinship groups (UNAIDS 1999). In addition, in data from countries in Latin America and the Caribbean and some parts of Africa point to the economic realities that rein- force the value of motherhood for women (Le Franc, Wyatt et al. 1996; Malow, Cassagnol et al. 2000). In Jamaica, for example, women have children to guar- antee economic support from the father. These social and economic realities pose signifi- cant hurdles for women in HIV risk reduction because the use of barrier methods or non-pene- trative sex prevents conception (Heise and Elias 1995; UNAIDS 1999). These realities have con- sequences in programmatic terms. In some cases, the prior- ity is placed on preventing transmission to the unborn child without regard for the rights of the mother to be informed and choose appropri- ately what is best for her and her child. This may include loss of choice over whether to be tested for HIV, whether to accept an intervention to pre- vent MTCT if it is available, or whether to freely choose pregnancy termination. In addi- tion, these programmes often do not encourage male involve- ment or male responsibility. 14 Integrating Gender into HIV/AIDSProgrammes a178 Additionally, programmes that seek to prevent MTCT by encouraging women not to breastfeed may also, in some settings, present significant obstacles for women. Breastfeeding is often an inte- gral part of the ideal of mother- hood and in many places women who do not breastfeed are seen as bad mothers or treated as handicapped (Rao Gupta 2000). The avoidance of breastfeeding has also become associated with being HIV-positive and thus can be a significant source of stigma. a178 Dependence versus Self Reliance: Women?s economic and social dependency on men greatly affects their use of serv- ices and their ability to adhere to treatments and other medical regimens. They are encouraged and sometimes forced to ask for permission from their husband or other family members to access services. Often, women will choose not to ask or will be denied, making it less likely that they will use services. Further, even if women do access services they often must consult their husbands or oth- ers in order to act upon the rec- ommendations of service providers, thereby creating a potential barrier to women?s adherence to treatment and care regimens. a178 Unlike women, who are expected to be dependent on others to make decisions and access resources, men in many societies are socialized to be self-reliant, not to show their emotions, and not to seek assistance in times of need or stress (WHO 1999). This expec- tation of invulnerability associ- ated with being a man runs counter to the expectation that men should protect themselves from potential infection and encourages the denial of risk. Overall, these manifestations of traditional notions of masculin- ity are strongly associated with a wide range of risk-taking behaviour. Mane and Aggleton (2001) point out that ?cultural and societal expectations and norms create an environment where risk is acceptable and even encouraged for ?real? men?. It is not surprising therefore that men are less likely to seek health care than women and are much more likely to use illegal substances and engage in unsafe sexual practices (Luck, Bamford et al. 2000). a178 Sexual Domination, Homophobia, and Violence Against Women: Notions of masculinity that emphasize sexual domination over women as a defining characteristic of manhood contribute to homo- phobia and the stigmatization of men who have sex with men. The stigma and fear that result compel men who have sex with men to keep their sexual behav- iour secret and deny their sexu- 15 Integrating Gender into HIV/AIDSProgrammes al risk, thereby increasing their own risk as well as the risk of their partners, female or male (UNAIDS 1999). a178 Another disturbing out- come of the emphasis on sexual and physical domination of women as central to masculini- ty is violence against women. In population-based studies conducted in a wide range of countries worldwide, 10 to over 50% of women report physical assault by an intimate partner. One-third to one-half of physi- cally abused women also report sexual coercion (Heise, Ellsberg et al. 1999). Research conduct- ed in a wide range of countries, including Guatemala, Haiti, India, Jamaica and Papua New Guinea found that violence against women contributes both directly and indirectly to women?s vulnerability to HIV. Most obviously, violent sexual acts such as rape are likely to result in vaginal tearing or lac- erations, thus dramatically increasing the risk of contract- ing an STI or HIV from the rapist (Maman, Campbell et al. 2000). Additionally, fear of vio- lence or abandonment often prevents women from dis- cussing fidelity with their partners or asking their part- ners to wear a condom. a178 Fear of violence has also been found to be a barrier to the success of efforts that seek to reduce the perinatal trans- mission of HIV. In a study of MTCT prevention programmes in six African countries, fear of ostracism and domestic vio- lence were important reasons for which pregnant women refused HIV testing or did not return for their test results. HIV-positive women who have been advised to bottle-feed their babies to avoid risk of HIV transmission have voiced simi- lar concerns (Brown 1998; Nyblade and Field-Nguer 2000). a178 The nexus between vio- lence, risky behaviour, and reproductive health has been documented by a review of liter- ature on sexual and physical violence, which showed that individuals who have been sex- ually abused as children are more likely to engage in unpro- tected sex, have multiple part- ners, and trade sex for money or drugs (Heise, Ellsberg et al. 1999). This relationship is also apparent from the results of a study conducted in India in which men who had experi- enced extramarital sex were 6.2 times more likely to report wife abuse than those who had not. In addition, men who reported symptoms of sexually transmitted infections were 2.4 times more likely to abuse their wives than those who did not (Martin, Kilgallen et al. 1999). a178 The experience of violence has also been found to be a 16 Integrating Gender into HIV/AIDSProgrammes strong predictor of HIV. In a study conducted in Tanzania among women who sought services in a VCT clinic, the odds of reporting violence was ten times higher among HIV- positive young women than similarly aged HIV-negative women (Maman, Mbwambo et al. 2002). a178 Access to Services: Sociocultural norms that define male and female roles and responsibilities also affect women?s and men?s access to and use of health services, including HIV/AIDS services. In countries in which ?son pref- erence? is the norm, in times of scarcity, families allocate resources for men and boys first and women and girls later or not at all. For example, in Pakistan, lower income house- holds seek health care more often for boys than girls and are more likely to use higher- quality providers for boys (Alderman and Gertler 1997). Women themselves continue this pattern because of being socialized to sacrifice their own interests. They often put the health of their children and families first and do not seek medical attention until they are seriously ill (Buvinic and Yudelman 1989). a178 In some regions of the world, women are further con- strained from using services because of gender norms sur- rounding their mobility. Practices such as purdah, com- mon in Islamic and Hindu soci- eties, where women are con- fined to their homes, prevent women from travelling to use services. Such practices also demand that health care servic- es employ women care-givers, and provide the privacy, mod- esty, and seclusion necessary for women to feel comfortable to use the service (Mehra, Bruns et al. 1992). For example, many women feel uncomfortable interacting with male health care providers or being forced to expose themselves in semi- public wards (Auerbach 1982). Moreover, services often lack characteristics that women find essential, such as emotional support. a178 The barriers that men face in using services are often related to sociocultural norms that ascribe reproductive responsibilities entirely to women and shut men out of parenting or nurturing roles. For example: family planning, prenatal, and child health clin- ics are typically not designed to reach men or meet men?s needs. Because, in many coun- tries, HIV/AIDS information and services are provided pri- marily in such clinics, men are less likely to benefit from those services and are thus less likely to be fully informed about HIV/AIDS prevention, care and support, and treatment options 17 Integrating Gender into HIV/AIDSProgrammes (Mane and Aggleton 2001; UNAIDS 2001). This has signifi- cant implications for men?s ability to protect themselves from infection and cope with the epidemic. 3.3 Economic Factors: Poverty and Dependency a178 Poverty and economic dependency greatly increase both women?s and men?s vul- nerability in the HIV/AIDS epi- demic. Overall, economic growth has noticeably decreased the numbers of indi- viduals living in absolute pover- ty worldwide. Women?s econom- ic status has also shown signif- icant improvements over the last decade. The gender gap in education is significantly lower and there are more women earning an income today than ever before. Yet, it is also true that the majority of these women are in insecure jobs in the informal sector and those that are employed in the formal sector continue to earn less than men (UNIFEM 2000). Within certain countries, there are also sharp differences between women based on eth- nicity, race, and socioeconomic status. Labor market challenges such as unemployment, wage gaps, and occupational segrega- tion are greater for poor women of color and of indigenous descent (Inter-American Development Bank 1998). a178 A review of women?s eco- nomic status is important in order to assess their vulnera- bility to HIV because we have strong evidence to establish a direct link between women's low economic status and their vulnerability and exposure to HIV. Research from the U.S. shows women who have lower incomes and less than a high school diploma were less likely than higher income women who had a high school diploma to use condoms (Pearson, Grinstead et al. 1992; Anderson, Brackbill et al. 1996). Other ways in which women?s economic status affects their vulnerability in the HIV/AIDS epidemic are described below. a178 Sex as a Marketable Commodity: Studies from across the developing world indicate that poverty is over- whelmingly the root cause of women bartering sex for eco- nomic gain or survival (Weiss, Whelan et al. 2000). When sex ?buys? food, shelter, or safety, it is very difficult to follow preven- tion messages that call for a reduction in the number of sex- ual partners. Although com- mercial sex work is the most well-known way for women to exchange sex for money, there is a range of other types of 18 Integrating Gender into HIV/AIDSProgrammes ?transactional? sexual partner- ships that women use as a rational means to make ends meet. For example, in Haiti, faced with trying to balance the multiple demands of family and economic survival, single moth- ers often enter into a series of sexual relationships, called plasaj, in order to obtain food and housing for themselves and their children. Alarmingly, research has shown that women in this setting who entered a sexual relationship out of economic necessity had increased odds of having syphilis and HIV infection (Fitzgerald, Behets et al. 2000). a178 Lack of Economic Leverage: Women who are eco- nomically vulnerable are less able to negotiate the use of a condom or fidelity with a non- monogamous male partner and less likely to leave relationships that they perceive to be risky because they lack bargaining power and fear abandonment and destitution (Mane, Rao Gupta et al. 1994; Heise and Elias 1995; Weiss and Rao Gupta 1998). There are data to show that women in high-risk relationships perceive the short-term costs of leaving the relationship much higher than the potential long-term health costs. a178 Lack of Access to Information: Women and men who are economically dis- advantaged are less likely to have information about HIV/AIDS than those from higher income levels, and are therefore more vulnerable to infection. A recent analysis showed that knowledge of HIV/AIDS prevention is dis- tinctly higher among the better- off than among the economical- ly disadvantaged in almost every country with available data (Gwatkin and Deveshwar- Bahl 2001). It is important to note that the analysis showed that the gender gap in knowl- edge (which favours men) per- sists at all income levels. a178 Impact of Migration: Poverty and the lack of econom- ic opportunity make it more likely that both women and men will migrate in search of income and employment, which can disrupt stable social and familial relationships and expose both men and women to increased risk of infection. Moreover, in most settings, migrant populations are more likely to be socially marginal- ized, with restricted access to economic assets, information, and services (UNAIDS 1999). a178 Research from Africa has shown that rural-to-urban migration of men leads them to form new sexual networks in areas where an unequal ratio of men to women and a higher seroprevalence rate is likely to make them more vulnerable to 19 Integrating Gender into HIV/AIDSProgrammes infection (Bassett and Mhloyi 1991; Sanders and Sambo 1991). When men are engaged in seasonal migration for work, and often return home to their community of origin, the vul- nerability of their female part- ners who are left behind is sig- nificant. The situation is often further exacerbated by the fact that wives and other long-term sexual partners of migratory workers find it extremely diffi- cult to insist on the use of con- doms when their men have been away for so long working hard to send money home. Migratory women workers face similar risks. Being away from home makes it likely that they will establish new sexual net- works or engage in multiple partnerships for economic gain or security. a178 Impact of Ethnicity, Caste, and Race: Gender inter- sects with ethnicity, caste, and race to create multiple vulnera- bilities for those who belong to marginalized ethnic, caste, and racial minorities, who have borne a long history of discrimi- nation and disadvantage. In almost every region of the world, there are large gaps in terms of schooling and employ- ment between those who belong to racial, caste, and ethnic minorities and those who do not. Ethnic, caste, and racial minorities are also disproportion- ately represented among the poor in every region of the world. a178 With less economic opportunity and hope, individu- als from minority or disadvan- taged groups are more likely to resort to risky behaviour such as injecting drug use or exchanging sex as a means of survival. Socially and economi- cally marginalized populations also typically have less access to health information and serv- ices, increasing their vulnera- bility of contracting illness and reducing the chances that their illnesses will get adequately treated. Unfortunately, HIV prevalence rates among minori- ties are usually politically sen- sitive data and as a result very few countries disaggregate such data by race, caste, or ethnici- ty. a178 Coping with the Socioeconomic Impacts of the Epidemic: Gender also affects the way in which women and men are affected by the economic impacts of the epi- demic. Research has shown that women are generally more vulnerable to the consequences of AIDS morbidity and mortali- ty, whether they themselves are HIV-positive, or they are living with and caring for others who are HIV-positive within the fam- ily, or both ? a situation whose prevalence is on the rise. Because women are more likely to wait longer periods of time before seeking services and treatments during the course of an illness, they are more 20 Integrating Gender into HIV/AIDSProgrammes likely to be at an advanced stage of HIV infection and pres- ent related opportunistic infec- tions before they actually seek out treatment and services. Thus, they are far less likely to take advantage of whatever treatments are available. They are also more likely than men to serve as the primary caretak- ers of others who are infected and to remain silent about their own health problems when other family members are in need of caring ? whether ill or not. From data in high preva- lence settings in Africa it is known that the combined phys- ical and emotional burdens of caring for sick family members and ensuring their food security under harsh economic condi- tions often takes a toll on women?s own health and well- being (Danziger 1994). a178 The economic vulnerabili- ty of women also exposes them to graver consequences when faced with the stigma and dis- crimination typically associated with being infected or affected by HIV/AIDS. When faced with the social ostracism and aban- donment that often result, women frequently face tragic consequences because they lack the necessary economic resources to cope (Nyblade and Field-Nguer 2000). a178 Access to and Use of Services: Economic factors also affect women?s access to and use of services. Economic constraints such as the lack of money to pay for services or transportation, or the high opportunity costs of lost time, create significant barriers for women?s use of health services (Leslie and Rao Gupta 1989; Moses, Manji et al. 1992). a178 The larger workloads of women who live in poverty or in low-income settings make it more difficult for them to take the time to access services. Worldwide, women spend between 10 and 16 hours a day doing housework, collecting water and firewood, caring for children, and producing their family?s food (Buvinic and Yudelman 1989). This daily burden of work is significantly larger than men?s. For example, African women perform about 90% of the work of hoeing, weeding, processing food, and providing water and firewood, 80% of food storage and trans- port and 60% of harvesting and marketing (World Bank 1989). Taking time to use services is particularly difficult for rural women because they also have to take time to travel to urban areas or village centers where services are located. a178 Women?s economic vul- nerability further constrains their time. Women are concen- trated in more insecure jobs with longer hours, poorer pay, and little or no benefits (United 21 Integrating Gender into HIV/AIDSProgrammes Nations 2000). These long hours are added to women?s already large burden of domes- tic work, leaving less time in the day to use health services. Additionally, in such jobs women have little control over the hours or conditions of work, making it difficult to take time off. Further, smaller incomes make the cost of services more prohibitive for women and the insecure and small, but critical income make the opportunity cost of missing work larger for women. Thus, reducing waiting times in clinics and ensuring that the timings during which services are provided are con- venient for women?s work schedules are key to increasing their access to those services. a178 In families where income and resources are pooled from multiple individuals, women are still at a disadvantage in access- ing funds for health services because families typically allo- cate resources for men and boys first and women and girls later or not at all (Buvinic and Yudelman 1989; International Center for Research on Women 1989). As a result of these fac- tors, the formidable cost of HIV/AIDS treatments in most developing countries are more likely to constrain women?s access than that of men. a178 Experience of providing free and universal access to antiretroviral therapy for treat- ment of HIV/AIDS in Brazil, shows that even when services are free there are noticeable gender differences in the seek- ing and use of services. One of the challenges that remains in Brazil?s treatment programme is that, despite a large network of anonymous voluntary coun- selling and testing units throughout the country, women are not being diagnosed until the late stages of infection (Bastos, Kerrigan et al. 2001; Luppi, Eluf-Neto et al. 2001). One of the explanations offered is that for women, testing is offered in prenatal clinics, even though many poor women do not typically use prenatal care until late in their pregnancy (Bastos, Kerrigan et al. 2001). Another possible explanation is that women do not perceive themselves to be at risk of HIV and therefore do not seek test- ing. Other data suggest that women?s lack of use of services could also be the result of the discrimination they face at the hand of health workers, who treat them as if they were pros- titutes or injecting drug users (Ventura-Felipe, Bugamelli et al. 2000). a178 In summary, gender- related factors increase women?s economic vulnerability and dependency, which in turn increases their vulnerability to being infected, restricts their access to much-needed infor- mation and services, and 22 Integrating Gender into HIV/AIDSProgrammes exposes them to severe conse- quences when infected or affected by HIV/AIDS. For men, gender-related norms and eco- nomic need force them to migrate without their families in search of work, creating situ- ations that foster multiple sexu- al relationships that may lead to HIV infection. Overall, pover- ty greatly exacerbates both women?s and men?s vulnerabili- ty by restricting access to infor- mation and services and mak- ing it more difficult to cope with the impact of the epidemic. 3.4 The Special Vulnerabilities of Adolescents and Youth a178 This section presents the ways in which gender plays a particularly significant role in the experience of adolescents in the HIV/AIDS epidemic and affects their sexual risk and vulnerability. Because age intersects with gender in deter- mining the distribution of power in any society, younger members of a society, typically, have less power than older indi- viduals and younger women or girls have less power than younger men or boys. a178 Moreover, the power imbalance characteristic of gen- der relations among women and men ? within and outside rela- tionships ? has many of its roots in adolescence. At the same time, in most societies adolescents are no longer fully under the protection and guid- ance of their adult parents, yet, they are also not endowed and entrusted with the rights and responsibilities of adult men and women. As they enter a new world of social relation- ships, young people face the challenge of reconciling cultural and family-based expectations and norms of behaviour with their own emerging sexual feel- ings and desires (Weiss, Whelan et al. 2000). When the chal- lenges of adolescence occur concurrently with emerging gender-related norms and expectations, a set of special vulnerabilities arise for youth ? vulnerabilities that are espe- cially salient for the design and implementation of youth-orient- ed HIV/AIDS policies and pro- grammes. a178 Most statistics on adoles- cent sexual health tend to focus solely on age of sexual initia- tion, the incidence of sexually transmitted infections (STIs), and the health, social and eco- nomic consequences of early motherhood. What these statis- tics do not reveal is the context in which risk behaviour takes place, including the factors that contribute to early sexual initia- tion and unprotected sex, and how these factors differ for 23 Integrating Gender into HIV/AIDSProgrammes young males and females (Weiss, Whelan et al. 2000). a178 Among the most impor- tant factors are gender differ- ences in socialization of young people. Early in adolescent life, roles are assigned to boys and girls in matters regarding free- dom of mobility, time use, types of education, and decision-mak- ing responsibilities within the home (Weiss, Whelan et al. 2000). This includes the early assignment of sexual ?privileges? for young men, including those that introduce and subsequent- ly reinforce the idea that sex is a male ?necessity?. In contrast, a set of sexual ?responsibilities? are assigned to young women, including the maintenance of virginity, responsibility for birth control, or exhortations that passivity and ignorance about sex is the best ?protec- tion? a girl can have from sexual interactions. a178 Although delayed sexual debut is a legitimate core ele- ment of many HIV prevention efforts for adolescents, it is important to note that the severe negative social sanctions associated with the loss of vir- ginity, paradoxically, increase young women?s risk of infection in many ways. It restricts young unmarried women?s ability to ask for information about sex or reproductive health out of fear that they will be thought to be sexually active. Also, in cultures where virginity is highly valued, some young women practice alternative sexual behaviours, such as anal sex, in order to preserve their virginity, regard- less of the fact that these behaviors may place them at increased risk of HIV (Weiss, Whelan et al. 2000). Particularly strong norms that reify virginity and a culture of silence about sex makes access- ing treatment services for sexu- ally transmitted diseases highly stigmatizing for adolescent and adult women (de Bruyn, Jackson et al. 1995; Weiss, Whelan et al. 2000). a178 Recent data on the norm of virginity notes a shift in young people?s attitudes toward premarital sex. Studies on the attitudes and behaviors of ado- lescents found that there is a ?rupture in the salience of vir- ginity? as a normative ideal for adolescent girls (Dowsett, Aggleton et al. 1998). The researchers attribute this change to an increasing sexual assertiveness by young women and the acceptance by some young men of more equitable gender roles for women. It is notable, however, that these changes have not created a dent in other attitudes about gender roles, such as women?s ?natural? inclination to get mar- ried and have children, and men?s ?natural? need to be sexu- ally assertive. 24 Integrating Gender into HIV/AIDSProgrammes a178 Data also indicate that despite the norm of virginity, young women and men are hav- ing sex prior to marriage and early in their teens. The per- centage of adolescent girls who have had sex before the age of 18 years varies greatly between countries, ranging from 66% in Ghana to 20% in Mexico (Alan Guttmacher Institute 1998; PAHO, WHO et al. 2001). a178 Young people?s risk of infection is also greatly affected by their lack of economic options. Frustrated youth with few economic opportunities are more likely to engage in a range of risk behaviours, such as using drugs and engaging in unprotected sex in exchange for gifts, money, or favours (Mathur, Malhotra et al. 2001). A notable trend is the number of young women who are having sex with older men for money, material goods, or gifts (Rao Gupta and Weiss 1993; National AIDS Programmes of Trinidad and Tobago 1995; Zelaya, Mar?n et al. 1997). This is a troubling trend because older men are likely to have had more previous sex partners and therefore are more likely to have been exposed to HIV or other sexually transmitted infections. a178 While the lack of econom- ic opportunities increases the risk of transmission of HIV, the converse is also true. AIDS fuels youth?s lack of economic opportunities because of the overall economic impact of the epidemic in weakening local economies. Yet, often, youth?s need for economic options is greatest in the epidemic. When parents or other family mem- bers become ill or die, adoles- cents become providers and even heads of households, forced to take on the economic responsibility for themselves and their families. a178 Increasingly, programmes have attempted to respond to this situation by creating ?linked? services that attempt to meet both the reproductive health and livelihood needs of young people. Such pro- grammes have clearly emerged in response to community need and frequently adopt innovative and creative strategies to serve youth?s needs (Esim, Malhotra et al. 2001). However, these linked programmes face formi- dable challenges. Currently, there are no ?model? programmes and optimal methods for ?link- ing? in a way that provides addi- tional value are still unclear (Esim, Malhotra et al. 2001). a178 As this section under- scores, adolescence is a partic- ularly vulnerable time. But it is equally true that the adolescent years provide a window of opportunity to bring about changes in levels of knowledge, attitudes and behaviours before they are fully formed. In order Integrating Gender into HIV/AIDSProgrammes 25 for HIV/AIDS interventions to use this window of opportunity to reduce young people?s vul- nerability to HIV and address their needs within this epidem- ic, it is critical not only to ensure that boys and girls get accurate information and skills but that interventions also help them develop more equitable and respectful gender norms of behaviour. 26 Integrating Gender into HIV/AIDSProgrammes Gender norms that pres-sure women and men ideals of femininity and mas- culinity and restrict women?s access to economic resources fuel the spread of HIV/AIDS and negatively affect individu- als? experience when infected or affected by the disease. By cur- tailing women?s sexual rights and autonomy, encouraging irresponsible and risky sexual behaviour among men, restrict- ing women?s access to and use of economic resources and fos- tering homophobia, gender norms have contributed to cre- ating a culture of silence and shame that surrounds sexuality and an unequal balance of power between women and men. Together these pose a sig- nificant challenge for policies and programmes that seek to contain the spread of the HIV/AIDS epidemic. a178 To meet this challenge, WHO is committed to integrat- ing gender considerations into all HIV/AIDS programming. This is in keeping with WHO?s overall goal of integrating gen- der into all aspects of its broad mandate to assure health for all (World Health Organization 2002). This goal includes ana- lyzing and addressing gender issues in planning, implementa- tion, monitoring and evaluation of policies, programmes, proj- ects and research. WHO recog- nizes that integrating gender considerations is essential for: a69Increasing coverage, effective- ness and efficiency of interven- tions; a69The promotion of equity and equality between women and men, throughout the life course, and ensuring that interventions do not promote inequitable gender roles and relations; a69The provision of qualitative and quantitative information on the influence of gender on health and health care; and a69Supporting Member States in undertaking gender-responsive planning, implementation and evaluation of policies pro- grammes, and projects. a178 Gender integration in HIV/AIDS programming, as in all development programming, has two aspects: a69 technical/substantive; and a69 structural. 4. Integrating Gender into HIV/AIDS Programming and Policies 4. Integrating Gender into HIV/AIDS Programming and Policies 27 Integrating Gender into HIV/AIDSProgrammes The technical/substantive aspect of gender integration refers to the specific approaches or strategies used to address gender differences and con- straints in HIV/AIDS pro- grammes and policies. But these technical approaches are unlikely to be adopted without attention to the structural aspects of gender integration; to fully integrate a gender per- spective into all programming within an institution requires institutional systems, process- es, and structures that routine- ly, continuously, and compre- hensively identify and respond appropriately to the different ways in which gender affects programming (see Box 1). The different technical and structur- al approaches to integrating gender in HIV/AIDS program- ming within institutions are described in the sections below. 4.1 Technical Approaches for Gender Integration a178 The HIV/AIDS epidemic is highly complex in its reach and impact. These complexities are magnified when we examine them through the lens of gen- der. A conceptual framework that sorts through the different types of gendered responses to the epidemic and differentiates one approach from the other can greatly facilitate the devel- opment of guidelines to assist programme managers and poli- cy makers to integrate gender in HIV/AIDS programming. a178 Existing approaches to address gender in HIV/AIDS programming fall along a con- tinuum from ?harmful? (i.e., making discriminatory distinc- tions between men and women that actually negate any real or potential programme successes) to ?empowering? (i.e., fostering the ability of men and women to become free of gender-related constraints and power imbal- ances, and improving women?s capabilities to organize, make choices and decisions, take positions of leadership, and shape their own destinies). While this continuum may in many cases seem ?linear?, some interventions may be success- fully gender-integrative in one aspect, yet more harmful in another. It is therefore impor- tant to consider the full range of activities in each intervention and assess them in terms of the following levels. 4.1.1 ?DO NO HARM? a178 The most basic and fun- damental aspect of a gendered set of policies and programmes requires the elimination of those assumptions, suppositions and stereotypes that are damaging Integrating Gender into HIV/AIDSProgrammes28 Box 1: Is Schooling A Risk? A recent study carried out in a government-run, co-educational secondary boarding school in Kampala, Uganda demonstrated that even a well-designed and implemented HIV/AIDS education programme can be thwarted by the over- all gender-discriminatory environment within which the programme is conduct- ed. This evidence was corroborated by data collected from 21 other schools around the country. The main finding of the study showed the school to be a site of an extensive set of gendered practices, which constituted a risk in themselves in terms of sexual health. In particular, four patterns or forms of ?control? emerged from the study: hegemonic masculinity; gendered discipline patterns, sexual harassment, and ?compulsory'?heterosexuality. In the first instance, the AIDS education curriculum addresses the power dis- parities between male and female but the mechanisms used to gain power within the school ? defining ?leadership? as a male preserve, for example ? compromises that part of the curriculum that seeks to change gender norms. In terms of gendered discipline patterns, school officials defined differential levels of discipline for boys and girls, for example, by reinforcing the idea of girls as ?victims? ? where rules and regulations for them were designed ?for their safety?. Thus girls were more ?policed? than boys, including treating girls as if they might ?tempt? boys sexually. Girls were urged thus to be ?obedient? in a manner not required of boys. These practices negated parts of the curriculum designed to encourage boys and girls to ?question? gender role stereotypes as a means of empowerment. Sexual harassment in this environment meant that boys controlled the lan- guage space and physical space of the girls, forcing them into silence. Harassment of the girls ranged from having to put up with verbal slights and insults to actual physical abuse ? even adult female teachers experienced verbal abuse from boys in their classes. In Uganda, social and sexual interaction within a co-educational setting is the norm ? students do not self-segregate. In some cases, there were reports by girls of ?forced relationships?, that they conformed in order to ?be safe? despite their dislike of the situation. The boys were pressured by their peers to take on girlfriends, lest they be teased. Boys were also expected to ?prove? themselves and often dared to ?do something? with a girl. Failure to conform can lead to disciplinary measures by peers. All these findings suggest that even well-designed, ?Best Practice? school-based prevention programmes for youth may fail if the gendered environmental context is not taken into account. Source: (Mirembe and Davies 2001). 29 Integrating Gender into HIV/AIDSProgrammes to women?s and men?s ability to benefit from interventions and policy responses to HIV/AIDS. a178 Programming sometimes provides women and men the same interventions when their needs are different and/or pro- vides women and men different interventions when their needs are the same. The most impor- tant lesson for doing no harm is that in order to be gender sensi- tive health programmes must offer different services for women as compared to men when their needs differ but must ensure that services do not treat women and men differently when their needs are the same. This does not mean that supporting programmes for women exclusively when it is appropriate to do so must pres- ent a ?trade-off? that excludes the necessity of programming exclusively for men. a178 Many of our past, and unfortunately, current HIV pre- vention efforts have fostered violent, predatory and irrespon- sible images of male sexuality, while at the same time portray- ing women as powerless and passive ?victims? of male power and domination. In addition, women are often seen as ?repos- itories? of infection and disease, responsible for bringing illness and death into their households and communities. Particularly vivid examples of these stereo- types are prevention efforts that portray sex workers as harbin- gers of death, and condom pro- motion efforts that employ macho stereotypes of male viril- ity in order to promote condom sales. Although such efforts may result in short-term gains through, for example, an increase in condom sales, in the long-term they erode the very foundations upon which HIV prevention activities are based, namely responsible, respectful, consensual, and mutually satisfying sexual part- nerships. a178 Another common mistake made in HIV/AIDS program- ming that seeks to be gender- sensitive is when women and men are provided different interventions or information based on stereotypes of women?s and men?s roles when, in fact, their needs and respon- sibilities are the same. A com- mon example is when basic information about the preven- tion of perinatal transmission of HIV is provided only to women, with the assumption that it is women who are mothers and must therefore be the only ones informed about ways to prevent MTCT of infection. This has many harmful outcomes. First, it undermines any efforts to encourage parenting as the responsibility of both mother and father. Second, it makes it more likely that men will block their female partner?s use of MTCT prevention services 30 Integrating Gender into HIV/AIDSProgrammes because they are not fully informed about the value of the intervention. Third, it reinforces the stereotype of women as ?vec- tors of disease?. Finally, it con- tributes to the social (and sometimes physical) harm that women experience as a result of being the ?first? to ?take home? an HIV-positive test result. Thus, providing women and men with different interventions and information when their needs and responsibilities are the same is just as deleterious as providing women and men with the same interventions when their needs and con- straints are different. a178 In order to avoid doing harm or further reinforcing the very norms that a gendered response to HIV/AIDS must change, it is important to design interventions based on data on women?s and men?s lives in a particular community or setting, rather than presum- ing to know the reality based on stereotypical notions of gender roles. Box 1 provides an example of how an overlooked contextual aspect of an intervention can totally negate any gains made in the intervention, and ulti- mately can destroy an interven- tion?s credibility entirely. a178 Data on the inequalities and injustices that women face can sometimes lead to another harmful practice that could undermine the ultimate success of HIV/AIDS efforts. Blaming men for perpetuating injustices against women is not a produc- tive way to resolve the unequal balance of power in gender rela- tions. Such an approach runs the risk of shutting men out of the process of finding feasible solutions and significantly con- strains the ability of pro- grammes to work with women and men as equal partners in promoting reproductive and sexual health. Statements that see men as the major or sole problem to deal with in HIV/AIDS programmes run the additional risk of oversimplify- ing social, economic and politi- cal structures. They fail to acknowledge that gender, class, race, sexuality and age (among other factors) oppress men as well as women ? albeit in differ- ent ways and with different con- sequences (Mane and Aggleton 2001). a178 Although the idea that policies and programmes must do no harm may seem like sec- ond nature to those working at the programme and field levels, it may be the most pervasive shortcoming of many existing programmes. More comprehen- sive efforts cannot succeed unless HIV/AIDS programming first and foremost does no harm. It is important to remem- ber, however, that the elimina- tion of damaging assumptions and stereotypes about women and men does not constitute 31 Integrating Gender into HIV/AIDSProgrammes the only way to respond to gen- der considerations in program- ming. Although necessary, ?doing no harm? is only the first step along a continuum. 4.1.2 ?GENDER-SENSITIVE? PROGRAMMES a178 A second approach recog- nizes that the prevention, care, treatment and support needs of men and women are often dif- ferent, not only because of their distinct physiology, but more importantly, because the con- text of gender roles and rela- tions substantially influences how women and men will respond to initiatives designed to reduce risk or vulnerability or to alleviate the impact of AIDS. a178 Programmes that foster the development of female-con- trolled prevention technologies are one example of this type of programming. Another example would be educational messages about prevention that recognize the unequal power balance between men and women that is prevalent in all contexts and settings. Programmes that rec- ognize the unique vulnerabilities that men face ? such as the Healthy Highways Project in India ? represent another important and often overlooked aspect of gender-sensitive pro- gramming. In this case, the project seeks to lower the risk and vulnerability to HIV infec- tion of truck drivers, their young crew members, and their paid sexual partners (see Box 2). Another example of this type of programming is the integration of STI diagnosis and treatment interventions into family plan- ning clinics to help women access such services without fear of social censure. Providing women with a female condom or advocating for the develop- ment of microbicides are other examples of gender-sensitive interventions. Such efforts rec- ognize that the male condom is a male controlled technology and take account of the imbal- ance in power in sexual interac- tions that makes it difficult for women to negotiate condom use, by providing them with (or advocating for) an alternative ? a woman controlled preven- tion technology. a178 An adaptation of the tra- ditional model of prevention of MTCT is another example of a gender sensitive approach. The traditional MTCT preven- tion package consists of volun- tary counselling and testing of pregnant women, the provision of antiretrovirals for pregnant women who are infected in order to protect the unborn child from infection, and the provision of breast milk substi- tutes to reduce the risk of infec- tion to the baby once it is born. This standard protocol treats the woman as merely a carrier Integrating Gender into HIV/AIDSProgrammes32 Box 2: Addressing Male Vulnerability in India The Healthy Highways Project was planned and implemented by the Department for International Development, UK (DFID) and the Government of India's National AIDS Control Programme (NACO). The project aims to reduce the number of new HIV infections among inter-city truck drivers, their crew and paid sexual partners. Two regional units manage the work, which has been mainly implemented through more than 30 NGOs, 18 transport companies and a number of transport-related associations. In 1999, estimates suggested that almost 3.5 million people in India had become infected with HIV. Although there have been no studies to determine seroprevalence among truck drivers, there have been alarming increases in HIV infection among antenatal women in the areas where high concentrations of truck drivers live. There are up to five million truck drivers in India, and behavioural surveys show that 75% of truck drivers report extramarital sex, mostly with sex workers (among whom HIV infection is up to 60% in the worst affected areas). Truck driving involves long periods of separation from spouses and families, dangerous and exhausting work, and relatively high earnings. Commercial sex partners are usually extremely poor and are mobile rather than brothel-based, making them difficult to reach with HIV prevention messages and technologies. Since condoms are usually associated with family planning, this type of ?recreational sex? is usually unprotected. The Healthy Highways Project offers STI care and counselling, condom promo- tion and distribution, dissemination of educational materials and face-to-face behaviour change communication. While the mobility of drivers made conven- tional peer education impractical, training has been given to some who come into close contact with truckers, including petrol attendants, tobacco retailers and tea-shop owners. Beyond the 3.5 million men who have been reached through the project's activities, work has taken place with more than 33,000 sex workers, more than 2,000 of whom have been treated for STIs. Men have reacted positively, welcoming services and expressing eagerness to obtain more information. The NGOs working with the men have established excellent networks and links with gatekeepers, but have not always had prior experience working specifically with men. This should be kept in mind in any attempts to replicate this kind of intervention elsewhere. Source: (UNAIDS 2001). 33 Integrating Gender into HIV/AIDSProgrammes or vessel for the baby, giving no importance at all to the baby?s need for its own mother or the woman?s own right to treat- ment, care, and support. Cost considerations, among other factors, are cited as the reason for not including antiretrovirals for the infected mothers as part of this traditional regimen. Increasingly, however, program- mers are including treatment for opportunistic infections, care, and support for the infect- ed mother as additional ele- ments to the standard regimen, to help the mother through the pregnancy and to maintain her health and well-being, not just that of the baby (see Box 3). Such an adaptation responds to women?s needs and treats them as equally important as those of the child. a178 The bulk of HIV/AIDS programmes that have success- fully addressed gender have done so by acknowledging gen- der differences and designing services to meet the different needs of women and men. Although effective, it is impor- tant to remember that gender- sensitive programmes do very little to change those conditions that create gender-related barri- ers in the first place. If we are to think in terms of a long-term set of goals for the creation of successful and sustainable HIV/AIDS programmes, we must recognize that gender-sen- sitive interventions, while criti- cally important for meeting the needs of women and men in the epidemic, cannot be the ?end of the line?. 4.1.3 ?TRANSFORMATIVE? INTERVENTIONS a178 Programmes that seek to transform gender roles and cre- ate more gender-equitable rela- tionships are more advanced than gender-sensitive approaches because they seek to change the underlying conditions that cause gender inequities. They also transform HIV/AIDS initia- tives by reaching both women and men and recognizing both as critical players in ensuring the effectiveness of HIV/AIDS programming. a178 Transformative interven- tions use a variety of methods to work with men and women to facilitate an examination of gender and sexuality and its impact on male and female sex- ual health and relationships, as well as to reduce gender-related violence against women. One example is Stepping Stones, a well-known life skills training programme that uses transfor- mative methods to address HIV/AIDS as well as broader community issues (see Box 4). Through a curriculum that includes group participation, ways to change, and examina- tion of why people behave the way they do, participants are Integrating Gender into HIV/AIDSProgrammes34 Box 3: MTCT Interventions While prevention of MTCT has advanced significantly in recent years, care and support services for HIV-infected women have not moved forward with sufficient emphasis, despite the burden of HIV disease borne by women of reproductive age. Programmes for prevention of HIV infection in infants and young children (MTCT prevention) allow identification of HIV-infected women and delivery of short course antiretrovirals and other interventions to prevent HIV transmission to infants. They also offer an opportunity to provide care and support to HIV-infected women, chil- dren and their families. For the large part, MTCT prevention programmes have tended to focus only on children, offering very limited direct benefit to HIV-infected women. There is increased recognition and increased attention of the need for interventions for women who are identified as HIV-positive through such programmes. In particu- lar, recent treatment breakthroughs and their application in resource-constrained countries have led to demand for expanded care and support interventions that can benefit the health of the women themselves during and after pregnancy, as well as the health of their children and families. We must face many challenges in ensuring care of HIV-infected women identified through MTCT prevention and other service. The complex interactions between HIV prevention and care, treatment and support interventions point to shortcom- ings inherent in offering a single intervention, such as ARV drugs alone, to HIV-infected women. To date, however, there is very little normative and strategic guidance on the comprehensive HIV-related care, treatment and support needed by women in resource-constrained settings. Some progress has been made that will require continued advocacy and support. Advances have been made in highly active antiretroviral therapy (HAART) with simpler regimens and lower prices. The World Health Organization and its collaborative partners are developing guidance on a comprehensive approach to HIV-related care, treatment and support of HIV-infected women and their children in the context of Reproductive Health and Maternal and Child Health Services in resource-constrained settings. This guide will assist policy-makers and programme managers of HIV/AIDS and reproductive health programmes. The manual will present a menu of key interventions that includes medical, nutritional, and psy- chosocial interventions, based on an inventory of existing recommendations, a review of evidence, and experience of what works in different settings. It will also provide related norms and standards, highlight information gaps and establish research priorities. Several countries are proposing programmes for extending MTCT prevention efforts to care and support for women, to improve their own sur- vival. Health workers are encouraged to recognize the needs of HIV-infected women and refer HIV-infected mothers and infants for related services, as avail- able.Timely and adequate referring not only includes relevant care and medical services, but fostering of partnerships between maternal and health care pro- grammes and social, psychological, legal, and community based support systems. Integrating Gender into HIV/AIDSProgrammes 35 Box 4: The Challenges and Opportunities of Changing Gender Norms: The Stepping Stones Curriculum Stepping Stones is a life skills training package that encourages participants to find their lives, and those of others, worthwhile enough to look after themselves and each other. The original Stepping Stones package was designed as 18 sessions over 3-4 months, for at least four parallel groups of older and younger women and men, meeting simultaneously. Sessions were grouped around four main themes: a69group cooperation; a69why we behave in the ways we do; a69HIV and safer sex; and a69ways in which we can change. During workshop sessions, participants explore the range of factors that deter- mine the quality of their lives and discuss their hopes and fears. Through this process, participants are encouraged to take control and responsibility for their own lives and form a strong bond by recognizing the equal value and contribu- tion of each part of the community. It is on this basis that behaviour change ? not only for HIV prevention, but a wide range of other community develop- ment issues?can begin to take place. Experience has shown that Stepping Stones requires time, good training, skilled facilitation, care, negotiation, prolonged follow-up and more time. A wide range of factors can prevent the successful transfer of Stepping Stones from one context to another. Strategies to promote its success include: a69Ensuring high quality implementation. a69Promoting regular attendance. a69Reducing barriers to attendance for poor men. a69Bringing peer groups together. a69Meeting special requests. a69Challenging gender and age norms. a69Working with issues of difference within the community. a69Including ongoing participatory monitoring. Ongoing challenges ? and potential programmes failures ? include familiar concerns about condoms among participants and non-participants, in addition to objections about the ?open? discussion of sexuality and family planning, par- ticularly with young, unmarried people. However, the most important obstacle is achieving sustainability. As Baron Oron from Uganda stated, ?[when follow up is lacking, and the community expects it] it leaves a gap and may destroy all that has been created?. Source: (Gordon and Welbourn 2001). 36 Integrating Gender into HIV/AIDSProgrammes encouraged to take responsibili- ty for themselves and others to promote safer, more productive, behaviour in the future. What is novel about projects like Stepping Stones in particular is that they actively target men for something other than pro- moting condom use or generic ?safer sex? messages. These projects foster an environment that works with both men and women to redefine gender norms and encourage healthy sexuality. a178 Programmes such as these have grown out of a belief that the dominant form of mas- culinity can be changed and replaced with more gender equi- table models of malehood. Research conducted by Gary Barker (2000) in Brazil and by others was influential in estab- lishing that alternative, more equitable masculinities do exist (Necchi and Schufer 1998; Yon, Jimenez et al. 1998). Each of these studies identified young men who showed some degree of gender equity in their inti- mate and sexual interactions with young women. Barker (2000) went a step further and also identified the factors asso- ciated with gender equitable attitudes among the young men who were different. The key fac- tors he isolated include acknowl- edgement of the costs of tradi- tional masculinities to their own health and well being, access to adults who do not conform to traditional gender roles, rejec- tion of domestic violence within their families, and the presence of a gender equitable male peer group. a178 In addition to Stepping Stones, examples of other pro- grammes that seek to foster constructive roles for men in gender relations are the Men as Partners (MAP) programme in South Africa; the interventions that target young men, men in prisons, and a wide range of professional and working class men, designed and implement- ed by Salud y Genero, a small nongovernmental organization based in Mexico; and Project Papai in Recife, Brazil that tar- gets young men on themes related to fatherhood. a178 Transformative approach- es with youth attempt to shift the gender-power imbalance during a time when many pat- terns of adult behaviors are being formed. Some initiatives, such as the Mid-Peninsula AIDS Prevention Programme (see Box 5) have been piloted or field tested with promising initial results. This transformative approach was used in a school-based pre- vention programme on HIV for youth in California. The intent of the programme was to encourage youth to examine and challenge culturally pre- scribed expectations and norms that lead to behaviours that fos- ter risk of HIV infection. Integrating Gender into HIV/AIDSProgrammes 37 Box 5: Challenging "Sexual Scripts" with Youth in California, USA The Mid-Peninsula AIDS Prevention Programme, a project supported by the Center for AIDS Prevention Studies (CAPS) in San Francisco, recently tested an innovative school-based programme with more than 500 racially-diverse ninth graders (average age = 14 years). The programme educated youth on HIV and its transmission and worked to empower youth by teaching them to think critically about ?sexuality scripts? (sets of ideas and norms that prescribe ways of thinking and acting in terms of sex and sexuality) and how enact- ing these scripts can result in self-damaging behaviour. Many of these scripts prevent the empowerment of young women, and dis- empower young men in ways that they are not consciously aware of but which they assume to be normal and natural. Students participat- ed in the programme for one hour each day for a week. Activities included an interactive game on HIV facts, discussions of how sexu- al scripts affect experiences and expectations in sexual and romantic relationships, and brain-storming about strategies to resist internalization of such scripts in sex-specific groups. In an evaluation, researchers found that knowledge on HIV and STDs had increased significantly after the programme, but they were unable to demonstrate significant change in sexual behaviour. This lack of significant behaviour change was partially due to the low level of risk behaviour at baseline and the relative short time period of three months from baseline to evaluation. However, there was some change for sexually inactive girls; more of those in the study group delayed sex compared to those in the control group. Additionally, the evaluation demonstrated that the approach could have significant behavioural impacts in future. In the baseline study, there was a strong correlation between risky sexual behaviours with stereotypical beliefs about sex and gender, especially for boys. After the pro- gramme, the majority of participants said that the workshop helped them become more aware of gender pressures and better able to protect themselves from HIV and pressure to have sex. Source: (Somera and Laub 1998). 38 Integrating Gender into HIV/AIDSProgrammes a178 Other programmes that seek to transform gender rela- tions include efforts to work with couples as the unit of intervention, rather than with individual men and women. Couple counselling in HIV testing clinics to help cou- ples deal with the results of their tests and in family plan- ning programmes to promote dual-protection against both unwanted pregnancy and infec- tion are recent examples of efforts that seek to reduce the negative impacts of the gender power imbalance by including both partners in the interven- tion. The challenge these pro- grammes face is not being able to recruit couples who are will- ing to participate. Although many couples who do partici- pate describe couple coun- selling as a positive experience, so far the numbers who partici- pate have remained low (Becker 1996). Further research is needed to identify ways to over- come barriers to couple coun- selling and to test the effective- ness of this method in creating more gender-equitable relation- ships between women and men. 4.1.4 INTERVENTIONS THAT EMPOWER a178 At the other end of the continuum from damaging poli- cies and programmes are those that empower women and girls. These types of interventions seek to equalize the balance of power between women and men in order to reduce their vulnera- bility in the epidemic. Interventions that see empower- ment as an end goal also tend to treat HIV/AIDS within a larg- er context of social and eco- nomic development. Once example of this is a project car- ried out in Sonagachi, a red- light district in Calcutta, India. Initially designed as an inter- vention to reduce the level of STDs and increase condom use among sex workers, the programme has expanded to empower sex workers by enabling them to control their own lives and solve their own problems, as both a goal in and of itself and as a way to prevent the spread of HIV (see Box 6). a178 To design interventions to empower women requires us to first deconstruct the sources or components of power that are amenable to project or policy intervention. The first, most fundamental source of power for individuals in society is access to information, educa- tion, and skills. We must give women and men basic informa- tion about their bodies, sexuali- ty, disease, and reproduction. Access to information is vital for individuals to protect themselves in the HIV/AIDS pandemic and, more importantly, it is a basic human right. In addition, pro- viding women with basic skills such as increasing their con- Integrating Gender into HIV/AIDSProgrammes 39 Box 6: Sonagachi: Empowering Sex Workers to Prevent HIV/AIDS in India In 1992, the All India Institute of Hygiene and Public Health (AIIH&PH) in consultation with the National AIDS Control Organization (NACO) of India, the Ministry of Health and Family Welfare of West Bengal, and WHO initiated an HIV intervention targeting sex workers in Sonagachi, a red light district in Calcutta. In the beginning, the project was largely directed towards reducing the level of STDs and increasing condom use among sex workers. However, the programme has expanded to empower sex workers by enabling them to control their own lives and solve their own problems, as both a goal in and of itself and as a way to prevent the spread of HIV. As of 2000, the programme had reached over 8,000 street-based sex workers, out of an estimated 12,000 living in Calcutta, in a wide variety of activities. Several health care clinics have been built and staffed to provide ongoing health care, distribution of condoms, HIV testing and counselling, and the like. Many women also participate in peer education during six-week training sessions where they learn about health issues and where and when to go for health care. Through the peer education groups, an acting group developed that performs plays about STD and HIV prevention, as well as additional sex work issues. The group has performed at many venues, including the Twelfth World AIDS Conference in Geneva. In 1998, the sex workers initiated a Positive Hotline for counselling and support for HIV-positive individuals,including both sex workers and the larger community. Perhaps most significantly, in 1995, the sex workers began a registered cooperative where they save money, provide loans and small investment schemes for members, and market condoms. With the profits, mem- bers have started a cr?che for sex workers? children and purchased land for a training center outside of Calcutta where older sex workers produce handicrafts. Other activities have included legal aid and training and literacy classes for the sex workers and sensitization training for police. Despite challenges, including police raids and internal adjustments with the close integration of project staff and sex workers, the project has become a well- known success. Evaluations have consistently found significant improvements in knowledge of AIDS, condom use, and even STD and HIV incidence. For exam- ple, in 1992, 1.1% of sex workers surveyed reported always using condoms. By 1995, this rose to over 50%. Similarly, while HIV prevalence rose dramatically among sex workers in most parts of India, only 5.5% of randomly sampled women at Sonagachi were HIV-positive in 1998. While Sonagachi continues to expand and grow, complete with ongoing chal- lenges, they attribute their continuing success to placing the control of the inter- vention with the community, building capacity among both staff and sex workers, treating sex workers as whole persons, and meeting the sex workers? felt needs. Source: (UNAIDS 2000). 40 Integrating Gender into HIV/AIDSProgrammes dom literacy and providing them with the skills to commu- nicate with their partners about sex helps to reduce their risk and vulnerability to infection. a178 Another important source of power for women is access to economic resources and assets. Ensuring the implementation and protection of women?s prop- erty and inheritance rights; ensuring their access to sources of credit; ensuring equal pay for equal work; fostering the provi- sion of business, financial and marketing skills necessary for the success of their enterprises; providing access to agricultural extension services to ensure the highest yield from their land; promoting access to formal sec- tor employment; and ensuring their rights to be free of abuse and exploitation in the informal employment sector are all ways by which women?s access to economic resources can be facilitated. a178 Social capital is another critical source of power. Increasing social support for women who are struggling to change existing gender norms and helping them to expand their social networks by provid- ing them opportunities or meet- ing in groups and raising awareness in communities is yet another important ingredi- ent for building social capital and empowering women. Strengthening grass-roots women?s organizations by pro- viding them with adequate resources also helps build social capital for women. a178 In the final analysis, empowered women have the political agency to make deci- sions and shape their own des- tinies. Providing women with leadership opportunities, the opportunity to problem-solve and organize are well-tested ways of increasing women?s political power and could go a long way toward empowering women to cope with the varied demands that the HIV pandem- ic burdens them with. Beyond direct interventions, we need to pay attention to the contextual factors of empowerment as well. Working to protect women from violence and moving the prob- lem of gender-related violence out of the personal sphere and into the public sphere are other ways to facilitate their political empowerment. a178 In the ultimate analysis, reducing the imbalance in power between women and men requires policies that are designed to empower women. Policies that aim to decrease the gender gap in education, improve women?s access to eco- nomic resources, increase women?s civic and political par- ticipation, and protect women from violence are key to empow- ering women. HIV/AIDS pro- gramme experts and 41 Integrating Gender into HIV/AIDSProgrammes researchers must advocate strongly for creating a support- ive policy and legislative context for women because such a con- text is crucial for containing the spread of HIV/AIDS and miti- gating the impact of the epi- demic. 4.2 Structural Elements for Gender Integration a178 Since the mid-1990s, pro- gramme designers and imple- menters have struggled with turning knowledge about the gender-related determinants of risk and vulnerability to HIV/AIDS into effective pro- grammatic interventions. Beyond the constraints that are part and parcel of addressing gender within any particular public health programme, the very nature of the epidemic (i.e., its economic, social, cul- tural and political dimensions) has meant dealing with another set of constraints ? those that are deeply structural. If integra- tion of gender concerns at the technical level is to succeed, these structural constraints and barriers have to be addressed as well. a178 First and foremost is the need to foster and develop the political will and leadership at the level of state institutions that is necessary to create a policy environment amenable to the wholesale integration of gender into HIV/AIDS pro- grammes. This requires, among other things: directly engaging policy makers with the tools and materials that make a case for the value of integrating gen- der (especially the use of sound research data that demonstrate the incontrovertible evidence of the gender dimensions of HIV/AIDS), and providing them with guidelines on how to make that possible, supported by evaluation-based evidence from the field that demonstrates that addressing gender increases the effectiveness of HIV/AIDS pro- gramming. a178 There are many rationales in making a case for gender integration into HIV/AIDS pro- grammes. In particular, initia- tives to integrate gender can and should rely on equity and efficiency rationales, or at least be willing to alter rationales to meet the needs of those to whom advocacy for integrated programming is targeted. By equity, we are referring to advo- cacy based on human rights, appeals to justice, or other fair- ness-related arguments. The more instrumental efficiency approach maintains ? and right- fully so ? that gender integra- tion maximizes the effectiveness of programmes by reaching more people and reducing con- 42 Integrating Gender into HIV/AIDSProgrammes straints to accessing and using information, technologies and services for all. It yields more sustainable long-term results in terms of lowering the incidence of infection and mitigating the negative consequences of AIDS. Both rationales should be used, as appropriate for particular settings or audiences, to justify integration. a178 The allocation of financial resources is clearly a key struc- tural determinant of the suc- cess of any integration effort. However, this goes beyond sim- ply providing money for ?gender initiatives?, which often is fund- ing that is sporadic and nar- rowly targeted at a highly spe- cific project or programme. Successful integration of gender requires that funding for all programme areas be increased to match the overall program- matic goals of an HIV preven- tion, care and support, or treat- ment programme, with gender- analysis and gender-disaggre- gated goals and indicators for evaluation woven in through- out. a178 Successful integration requires that technical knowl- edge and understanding of and expertise on gender-analysis and the gender-specific realities of women and men exists at all levels and departments of the institution, not merely at the level of service provision. Gender must not be seen as an add-on or appendage, but rather a core element to be addressed in order to maximize the effectiveness of the pro- gramme. To ensure that the response to gender considera- tions is integrated not grafted on, it is critical that all institu- tional gender expertise not remain centralized in one department or with one ?key? gender ?point-person?. Integration must extend out- ward to ensure that all pro- gramme staff understand the gender-differentials related to: risk factors of HIV infection; access to information, educa- tion, services and technologies; differences in progression of HIV infection and distinctions between men and women as to the type and severity of oppor- tunistic infections; the different roles that men and women play as formal and informal care providers; and the differential social and economic burdens of AIDS morbidity and mortality. The training used to promote such knowledge and under- standing should be hands-on, practical, related to a specific type of intervention, and pre- sented in the context of maxi- mizing a programme activity?s effectiveness. a178 As with almost any kind of programmatic activity, the need for data that provide direc- tion to an institution as to where funds should be priori- tized and what kind of response Integrating Gender into HIV/AIDSProgrammes 43 would be best is crucial. While the data gap on women and HIV infection has more or less been bridged, there is still a need for sex-disaggregated data on a host of other socioeconomic indicators of women?s status that are essential in order to understand the direction, scope and impact of the epidemic in different parts of the world. Therefore, sex-disaggregated data collection and analysis is an important element for understanding and addressing gender. a178 Part and parcel of data collection is the effective moni- toring and evaluation of integra- tion into programmatic activi- ties. Again, this cannot be an ?add-on? or secondary goal of the project. Sound monitoring and evaluation criteria and tools need to be integrated into programme design from the outset, to ensure that the wide variety of gender-specific ele- ments ? technical and structur- al ? is being addressed. a178 In order to ensure that gender is integrated compre- hensively throughout a pro- gramme, there should be an institutional incentive system that rewards employees who pay attention to gender issues. Without such incentives, pro- grammes are likely to continue treating gender as a marginal aspect of ?mainstream? projects and programmes and pay lip- service to the issue rather than treat it as important for the effi- ciency and effectiveness of projects. Integrating Gender into HIV/AIDSProgrammes44 As with most areas ofpublic policy and action, relationship between gender and the HIV/AIDS pandemic is far ahead of our knowledge ? and in many instances, capabilities and commitments ? about how to respond effectively. Since the mid-1990s, programme planners and implementers, policy mak- ers, and donors have recognized the gender dimensions of the HIV/AIDS pandemic. It has been recognized that for effective results, the incorporation of gender considerations must per- meate programmes and policies at all levels. Integrating gender into existing and new HIV/AIDS programmes and policies must not be considered to be a ?side show?, luxury ?accessory? or a second-thought ?add-on?. Consideration of gender must form the very centerpiece of all policies and programmes aimed at slowing the spread of HIV and mitigating the impact of AIDS. a178 However, to date the majority of initiatives to inte- grate gender into effective pro- gramming have been small and experimental. Where pilot initia- tives seemed to show promise, navigating the uncharted waters of ?scaling-up? remains a signifi- cant challenge to overcome. a178 The acknowledgement of how deeply gender permeates the enormous scope of the HIV/AIDS pandemic has forced many to admit that this is more than a ?health matter?. The incorporation of a comprehen- sive gender framework to address HIV/AIDS issues goes far beyond the standard or tra- ditional set of HIV/AIDS inter- ventions to include a wide range of social and economic interven- tions. The realities of gender inequalities within the social and economic context of any given country can prevent or negate even the best HIV/AIDS interventions. These contextual factors cannot be ignored. Ultimately, to address economic and social gender inequities that lie at the root of the pandemic requires a multisectoral response that must increase women?s and girls? access to productive resources such as education, employment, land, and credit, end the culture of silence and shame that sur- rounds sexuality, and protect girls and boys from the corrosive effects of gender stereotyping. a178 This recognition that HIV/AIDS is more than a health matter is a critical step forward in addressing the pandemic. 5. The challenges that lie ahead 5. The challenges that lie ahead 45 Integrating Gender into HIV/AIDSProgrammes However, the questions of who should implement such non- health interventions and how it should be done naturally arise. Should institutions with health mandates engage in non-health interventions to address health outcomes, or should health institutions partner with non- health institutions through linked programmes and other mechanisms? Or should entire- ly new methods be used? These are not easy questions to address, yet the countries that have been the most successful in reducing the number of new infections (e.g. Senegal, Thailand and Uganda) are those that have used a multisectoral approach to HIV/AIDS. In the case of Uganda, programmatic and policy foci that included elimination of gender-damaging programmes, a commitment to gender sensitive HIV prevention, gender-transformative innova- tions and efforts to empower women (especially in the area of women's human rights) have been cited as key to the success of Uganda?s approach to HIV/AIDS (Garrett 2000; Sittitrai 2001). This review of issues andapproaches to address in the HIV/AIDS epidemic rein- forces the conclusion that suc- cess is contingent upon integrat- ing gender considerations. Clearly, if gender issues are ignored, programmes run the risk of minimizing their effective- ness or even causing harm. However, it is also clear that there is no single way to address gender, nor is there one approach that can guarantee success. Programmes must address individuals? vulnerability in a variety of ways within both short and long term timeframes. In the short term, gender-sensi- tive programmes are our best hope. We must continue to address women and men?s vulner- ability by continually adapting to and meeting women?s and men?s gender and age-specific needs within the current social and cul- tural context. But we must also plan for the long term. Gender- sensitive programming will not change the gender-based realities that fuel the epidemic and make women and men vulnerable. Transformative and empowering programmes must be implemented alongside gender-sensitive pro- grammes in the hope of ultimately challenging the very foundation of the epidemic. This is the broad direction we must take, but to fol- low this road map there is a great need for building the capacity of programmes and policy experts in integrating gender and for provid- ing them with specific program- matic guidelines that specify ?how? gender considerations can be inte- grated into different types of HIV/AIDS policies and pro- grammes. This is the next impor- tant step that WHO will take with others in order to ensure that gen- der norms and gender inequality do not continue to fuel the HIV/AIDS epidemic. 46 Integrating Gender into HIV/AIDSProgrammes 6. conclusion 47 Integrating Gender into HIV/AIDSProgrammes Alan Guttmacher Institute (1998). ?Into a New World: Young Women?s Sexual and Reproductive Lives?. New York, Alan Guttmacher Institute. Alderman, Herold and Paul Gertler (1997). ?Family resources and gender differences in human capital investments: the demand for children?s medical care in Pakistan?. Intrahousehold Resource Allocation: Methods, Application, and Policy. L. Haddad, J. Hoddinott and H. Alderman. Baltimore, Johns Hopkins University Press, 231-248. Anderson, JE, R Brackbill, et al. (1996). ?Condom Use for Disease Prevention among Unmarried US Women?. Family Planning Perspectives, 28: 25-28. Auerbach, L.S. (1982). ?Childbirth in Tunisia: Implication of a decision-making model?. Social Science & Medicine, 16:1499-1506. Barker, Gary and I Lowenstein (1997). ?Where the Boys Are: Attitudes related to masculinity, fatherhood, and violence toward women among low-income adolescent and young adult males in Rio de Janeiro, Brazil?. Youth and Society, 29(2):166-196. Bassett, Mary and M Mhloyi (1991). ?Women and AIDS in Zimbabwe: the making of an epidemic?. International Journal of Health Services, 21(1):143-156. Bastos, FI, D Kerrigan, et al. (2001). ?Treatment for HIV/AIDS in Brazil: Strengths, challenges, and opportunities for opera- tions research?. AIDScience, 1(15). Becker, S (1996). ?Couples and Reproductive Health: A review of couple studies?. Studies in Family Planning, 27(6): 291-306. Brown, D (1998). ?In Africa, Fear Makes HIV an Inheritance?. Washington Post. Washington DC, 28. 7. references 48 Integrating Gender into HIV/AIDSProgrammes Buvinic, Mayra and Sally Yudelman (1989). ?Women, Poverty and Progress in the Third World?. New York, Foreign Policy Association. Danziger, R (1994). ?Social Impact of HIV/AIDS in Developing Countries?. Social Science & Medicine, 39(7):905-917. de Bruyn, M., H. Jackson, et al. (1995). ?Facing the Challenges of HIV/AIDS/STDs: A gender-based response?. Amsterdam, Royal Tropical Institute, SAFAIDS, WHO/GPA. Dixon-Mueller, R. (1993). ?The Sexuality Connection in Reproductive Health?. Studies in Family Planning, 24(5): 269- 282. Dowsett, Gary W., Peter Aggleton, et al. (1998). ?Challenging gender relations among young people: the global challenge for HIV/AIDS prevention?. Critical Public Health, 8(4): 291-309. Esim, Simel, Anju Malhotra, et al. (2001). ?Making It Work: Linking Youth, Reproductive Health and Livelihoods?. Washington, DC, International Center for Research on Women. Fitzgerald, DW, F Behets, et al. (2000). ?Economic Hardship and Sexually Transmitted Diseases in Haiti?s Rural Artibonite Valley?. American Journal of Tropical Medicine and Hygiene 62(4):496-501. Garrett, Laurie (2000). ?Uganda?s Winning Strategy in the AIDS Battle?. Newsday. Gordon, Gill and with Alice Welbourn (2001). Stepping Stones and Men: A desk-based review of the effects of Stepping Stones. Gutmann, M. (1996). The meaning of macho: Being a man in Mexico City. Berkeley, University of California Press. Gwatkin, D.R. and G. Deveshwar-Bahl (2001). ?Inequalities in Knowledge of HIV/AIDS Prevention: An overview of socio-economic and gender differentials in developing countries?. Unpublished draft. 49 Integrating Gender into HIV/AIDSProgrammes Heise, Lori and Christopher Elias (1995). ?Transforming AIDS prevention to meet women's needs: a focus on developing countries?. Social Science & Medicine, 40(7):933-943. Heise, Lori, M. Ellsberg, et al. (1999). ?Ending Violence against Women? (Population Reports, Series L, No. 11). Baltimore, Johns Hopkins University School of Public Health, Population Information Programme. Inter-American Development Bank (1998). ?Economic and Social Progress in Latin America, 1998-1999 Report: Facing up to inequality in Latin America?. Washington DC, Inter-American Development Bank. International Center for Research on Women (1989). ?Strengthening Women: Health Research Priorities for Women in Developing Countries?. Washington DC, ICRW. Le Franc, E, GE Wyatt, et al. (1996). ?Working Women?s Sexual Risk Taking in Jamaica?. Social Science & Medicine, 42(10): 1411-1417. Leslie, J and G Rao Gupta (1989). ?Utilization of Formal Services for Maternal Nutrition and Health Care in the Third World?. Washington DC, International Center for Research on Women. Luck, M, M Bamford, et al. (2000). Men?s Health: Perspectives, diversity and paradox. Oxford, Blackwell. Luppi, CG, J Eluf-Neto, et al. (2001). ?Late Diagnosis of HIV Infection in Women Seeking Counselling and Testing Services in Sao Paulo, Brazil?. AIDS Patient Care and STDs, 5(7):391397. Malow, RM, T Cassagnol, et al. (2000). ?Relationship of Psychosocial Factors to HIV Risk among Haitian Women?. AIDS Education and Prevention, 12(1):79-92. Maman, Suzanne, Jaquelyn Campbell, et al. (2000). ?The Intersections of HIV and Violence: Directions for Future Research and Interventions?. Social Science & Medicine, 50:459-487. 50 Integrating Gender into HIV/AIDSProgrammes Maman, Suzanne, Jessie Mbwambo, et al. (In Press). ?HIV-1 Positive Women Report More Lifetime Experiences with Violence: Findings from a Voluntary HIV-1 Counselling and Testing Clinic in Dar es Salaam, Tanzania?. American Journal of Public Health. Mane, Purnima and Peter Aggleton (2001). ?Gender and HIV/AIDS: What Do Men Have to Do with It??. Current Sociology 49(6):23-37. Mane, Purnima, Geeta Rao Gupta, et al. (1994). ?Effective commu- nication between partners: AIDS and risk reduction for women?. AIDS 8 (Supplement 1), S325-S331. Martin, Sandra L., Brian Kilgallen, et al. (1999). ?Sexual Behaviors and Reproductive Health Outcomes: Associations With Wife Abuse in India?. Journal of the American Medical Association 282(20):1967-1972. Mathur, Sanyukta, Anju Malhotra, et al. (2001). ?Adolescent girls? life aspirations and reproductive health in Nepal? Reproductive Health Matters, 9(17):91-100. Mehra, Rekha, David Bruns, et al. (1992). ?Engendering Development in Asia and the Near East: A Sourcebook?. Washington DC, International Center for Research on Women. Mirembe, Robina and Lynn Davies (2001). ?Is Schooling a Risk? Gender, Power Relations and School Culture in Uganda?. Gender and Education, 13(4):40-416. Moses, S, F Manji, et al. (1992). ?Impact of user fees on attendance at a referral centre for sexually transmitted diseases?. Lancet, 340(8817):463-466. National AIDS Programme of Trinidad and Tobago (1995). ?Youth Response Survey: A national survey of knowledge, percep- tions and practices among 1500 youth in Trinidad and Tobago subsequent to IEC activities on AIDS?. Trinidad and Tobago, Ministry of Health. 51 Integrating Gender into HIV/AIDSProgrammes Necchi, S and M Schufer (1998). ?Adolescente Var?n: Iniciaci?n sexual y conducta reproductiva. Buenos Aires, Programa de Adolescencia, Hospital de Cl?nicas, Universidad de Buenos Aires/OMS/CONICET. Nyblade, Laura and Mary Lyn Field-Nguer (2000). ?Women, Communities, and the Prevention of Mother-to-Child Transmission of HIV: Issues and Findings from Community Research in Botswana and Zambia?. Washington, DC, International Center for Research on Women. Orubuloye, IO, JC Caldwell, et al. (1993). ?African Women?s Control over their Sexuality in an Era of AIDS: A study of the Yoruba of Nigeria?. Social Science & Medicine, 37:859-872. PAHO, WHO, et al. (2001). ?HIV and AIDS in the Americas: An epidemic with many faces?. Washington DC, PAHO. Paiva, Vera (1993). ?Sexuality, Condom Use and Gender Norms among Brazilian Teenagers?. Reproductive Health Matters, 2:98-108. Parker, Richard and Peter Aggleton (1999). ?Culture, Society and Sexuality: A reader?. London, UCL Press. Pearson, JL, OA Grinstead, et al. (1992). ?Correlates of HIV Risk Behaviors in Black and White San Francisco Heterosexuals: The population-based AIDS in multiethnic neighborhoods (AMEN) study?. Ethnicity and Disease, 2:361-370. Rao Gupta, Geeta (2000). ?The Best of Times and the Worst of Times: Implications of Scientific Advances in HIV Prevention in the Developing World?. Annals of the New York Academy of Sciences, 918:16-21. ________. (2000). ?Gender, Sexuality, and HIV/AIDS: The What, the Why, and the How? (Plenary Address). XIII Conference on HIV/AIDS, Durban, South Africa. Rao Gupta, Geeta and Ellen Weiss (1993). Women and AIDS: ?Developing a New Health Strategy?. Washington DC, International Center for Research on Women. 52 Integrating Gender into HIV/AIDSProgrammes Rivers, K. and P. Aggleton (2001). ?Men and the HIV Epidemic? New York, United Nations Development Programme. Sanders, D and A Sambo (1991). ?AIDS in Africa: the implications of economic recession and structural adjustment?. Health Policy and Planning, (2):157-165. Silberschmidt, Margarethe (2001). ?Disempowerment of Men in Rural and Urban East Africa: Implications for Male Identity and Sexual Behaviour?. World Development, 29(4):657-671. Sittitrai, Werasit (2001). ?HIV Prevention Needs and Successes: a tale of three countries?. An update on HIV prevention success in Senegal, Thailand and Uganda. Geneva, UNAIDS. Sittitrai, Werasit et al. (1991). ?The Survey of Partner Relations and Risk of HIV Infection in Thailand?. VII International Conference on AIDS, Florence, Italy. Somera, Donnovan and Carolyn Laub (1998). Mid-Peninsula YWCA AIDS Prevention Project. Breakin? Down Sexual Scripts: Empowering Youth in HIV Prevention Education. UNAIDS (1999). ?Gender and HIV/AIDS: Taking stock of research and programmes?. Geneva, UNAIDS. ________. (2000). ?Female Sex Worker Prevention Projects: Lessons Learnt from Papua New Guinea, India and Bangladesh? Geneva, UNAIDS. ________. (2001). ?Working with men for HIV prevention and care?. Geneva, Joint United Nations Programme on HIV/AIDS. UNIFEM (2000). ?Progress of the World?s Women 2000: UNIFEM Biennial Report. New York, UNIFEM. United Nations (2000). ?The World's Women 2000: Trends and Statistics?. New York, United Nations Publications. Ventura-Felipe, EM, LE Bugamelli, et al. (2000). ?Risk Perception and Counselling among HIV-positive Women in Sao Paulo, Brazil?. International Journal of STDs and AIDS, 11:112-114. 53 Integrating Gender into HIV/AIDSProgrammes Weiss, Ellen and Geeta Rao Gupta (1998). ?Bridging the Gap: Addressing Gender and Sexuality in HIV Prevention?. Washington, DC, International Center for Research on Women. Weiss, Ellen, Daniel Whelan, et al. (1996). ?Vulnerability and Opportunity: Adolescents and HIV/AIDS in the Developing World?. Washington, DC, International Center for Research on Women. ________. (2000). ?Gender, sexuality and HIV: making a difference in the lives of young women in developing countries?. Sexual and Relationship Therapy, 15(3): 233-245. WHO (1999). ?What about Boys?? A Literature Review on the Health and Development of Adolescent Boys. Geneva, WHO Department of Child and Adolescent Health and Development. Wingood, Gina M. and Ralph J. DiClemente (2000). ?Application of the Theory of Gender and Power to Examine HIV-Related Exposures, Risk Factors, and Effective Interventions for Women?. Health Education and Behaviour, 27(5):539-565. World Bank (1989). ?Women in Development: Issues for Economic and Sector Analysis, Policy, Planning, and Research?. Washington, DC, World Bank. World Health Organization (2002). ?WHO's Gender Policy: Integrating Gender Perspectives in the Work of WHO?, Geneva, WHO. Yon, C, O Jimenez, et al. (1998). ?Representations of Sexual and Preventive Practices in Relation to STDs and HIV/AIDS among Adolescents in Two Poor Neighborhoods in Lima, Peru?: Relationships between sexual partners and gender representations. Seminar on Men, Family Formation and Reproduction, Buenos Aires, Argentina. Zeidenstein, S. and K. Moore (1996). Learning about sexuality: A practical beginning. New York, Population Council. Zelaya, E, F Mar?n, et al. (1997). ?Gender and Social Differences in Adolescent Sexuality and Reproduction in Nicaragua?. Journal of Adolescent Health, 21(1):39-46. Department of Gender and Women?s Health Family and Community Health World Health Organization Avenue Appia 20 CH-1211 Geneva 27 Switzerland E-mail: genderandhealth@who.int http://www.who.int/gender/ ISBN 92 4 159039 4 Integrating Gender into HIV/AIDS Programmes a review paper World Health Organization Integrating Gender into HIV/AIDSProgrammesAReview Paper World Health Organization