********************************************************** SAATHII Electronic Newsletter HIV NEWS FROM INDIA Source: LiveMint.com, American Chronicle, The Times of India, MSN, Deccan Herald, The Hindu, Bernama and Express India. Posted on: 18/02/2008 COMPILED BY: Jacob Boopalan, and L. Ramakrishnan SAATHII Chennai Office. Note: this compilation contains news items about HIV/AIDS published in the Indian media, as well as articles relevant to HIV/AIDS in India published internationally. Articles in this and previous newsletters may also be accessed at http://www.saathii.org/orc/elibrary =============================================================== 1. HIV/AIDS patients finally dragging quacks to court LiveMint.com, February 15, 2008. http://www.livemint.com/2008/02/15235750/HIVAIDS-patients-finally-drag.html 2. Nepal´s returned HIV positive women face sad plight American Chronicle, February 15, 2008. http://www.americanchronicle.com/articles/52517 3. Lack of kits halt test at HIV centres The Times of India, February 16, 2008. http://timesofindia.indiatimes.com/Mumbai/Lack_of_kits_halt_test_at_HIV_centres/articleshow/2786937.cms 4. Two years on, AIDS bill yet to get nod MSN.com, February 16, 2008. http://news.in.msn.com/national/article.aspx?cp-documentid=1246144 5. INC gets 33 m Dollar world funding to fight AIDS Deccan Herald, February 16, 2008. http://www.deccanherald.com/DeccanHerald.com/Content/Feb162008/state2008021652679.asp?section=updatenews 6. ‘Table AIDS Bill in budget session’ The Hindu, February 16, 2008. http://www.hindu.com/2008/02/16/stories/2008021657651300.htm 7. Breaking the silence The Hindu, February 17, 2008. http://www.hindu.com/mag/2008/02/17/stories/2008021750100400.htm 8. More HIV-Infected Couples Tying The Knot In India Bernama, February 17, 2008. http://www.bernama.com.my/bernama/v3/news_world.php?id=314392 9. Free medicines, transport is all they want for battle against HIV Express India, February 18, 2008. http://www.expressindia.com/latest-news/Free-medicines-transport-is-all-they-want-for-battle-against-HIV/274249/ =============================================================== 1. HIV/AIDS patients finally dragging quacks to court LiveMint.com, February 15, 2008. http://www.livemint.com/2008/02/15235750/HIVAIDS-patients-finally-drag.html With the help of state laws and advocacy groups, some patients are filing lawsuits to get their money returned or banning false advertising to put the doctors out of business Mumbai: When 37-year-old Shantaram found out he was HIV-positive a few years ago, he was overwhelmed with fear—of discrimination, of death. Then he read about a cure in a local newspaper. Caught in the Net: Jondhale’s website offers a cure for HIV/AIDS. Suddenly hopeful, Shantaram decided to stake all he had—his tractor, his savings, even his land—to undergo the treatment at a clinic in Nanded, Maharashtra, run by a homeopath, Siddharth M. Jondhale. He paid some Rs1 lakh for six months of treatment. “I was so anxious, I was willing to try anything,” says Shantaram, who did not wish to be identified by his full name. But, at the end of the treatment, he remained HIV-positive. More than two decades after the discovery of India’s first HIV/AIDS case, a period marked by steady awareness of the disease, thousands of patients such as Shantaram continue to be drawn in by doctors who claim to offer a cure. Now, with the help of state laws and advocacy groups, some patients are filing lawsuits to get their money returned or banning false advertising to put the doctors out of business. “Many HIV-positive people fall for these claims because they are afraid of the stigma that the disease brings,” says Shabana Patel, president of the Network of Maharashtra by People Living with HIV/AIDS. The network typically receives more than 50 such complaints from HIV-positive patients each month. “It’s only when they realize that it is not working that they come to us seeking help.” With a local network of HIV-positive people, Shantaram found the means to fight back and is now on anti-retroviral therapy drugs. A few months ago, the network’s Nanded district chapter filed public interest litigation against some of the “doctors” offering cures for HIV/AIDS in and around Nanded, including Jondhale. On 10 October 2007, the Aurangabad bench of the Bombay high court passed interim orders against three such doctors who claimed their alternative treatments cured AIDS: Jondhale, Bhai Amarjeet Singh Major Punjab Singh Gill and Rajesh Pandit. The court also issued an order prohibiting the respondents from claiming through advertisements or any other medium that a cure or treatment for HIV/AIDS exists or that they are qualified medical practitioners who can provide a cure or treatment. Making such claims for diseases that contemporary medicine deems incurable (such as cancer and HIV/AIDS) is illegal under the Indian law, unless it is scientifically tried and tested, and conclusively proven curative. =============================================================== 2. Nepal´s returned HIV positive women face sad plight American Chronicle, February 15, 2008. http://www.americanchronicle.com/articles/52517 In dusty Raxaul south of Kathmandu, on a pale, cold winter´s morning the plight of a young Nepali woman being trafficked to India for the commercial sex sector is just beginning to unfurl. Sarswoti, from Dhading district bordering Nepal´s capital, Kathamndu, has been brought here promised of a lucrative job by Tirtha Ram a middleman, who actually is her first cousin. He has lured her with promises of posh South Extension flat in New Delhi´s well to do neighborhood, and many of Sarswoti's friends and cousins have left for India earlier attracted by such promises. Tirtha´s narrated story to her parents is all too believable for Sarswoti, whose life all depends on her parent´s wishes as in most parts of Nepal where a woman has little individual rights particularly if she is uneducated. Tirtha has told them that that the Indian owner for whom Sarswati is going to work is in the Gulf region, she is going to be paid Rs. 3000 (US%5) for every month she has served. Sarswoti will get free accommodation, food, and be able to roam freely on weekends to go and watch the movies in the big eye catching Indian cosmopolitan city of New Delhi with new friends she will soon make once there. It is only when Sarswoti travels further south down the narrow dusty bus lane and reaches Gorakhpur she suddenly realizes that things are not as Tirtha Ram had promised. Tirtha has already left the day before making a clever alibi that he has to go and make a phone call to his wife in Nepal. Soon an unknown woman enters the small little dingy room she has been kept in. The woman tells Sarswoti that she is pretty, young, very fair and good looking. She is going to adopt her as her daughter; Tirtha has already gone back to the Indo-Nepalese border to get another group of women across to Gorakhpur. At first this Indian ´guardian´ mother of Nepalese descent drugs Sarswoti and locks her up in a room for three days without food and only a sip of water. When Sarswoti protests, she starts cursing her, and soon physically punishing her. In a week´s time, Sarswoti is gang raped, intimidated with cigarettes, burning charcoal heaped on her arms and thighs, left hungry with bruises all over her body, with no one to complain to, in total misery and no one to help her out. Meanwhile her parents in Dhading seem all too happy with Tirtha for giving them Rs. 18,000 equivalent, or roughly US $280 for Sarswoti as a salary advancement. From Nepal, anywhere between 10,000 to 15,000 women have been trafficked this way to India to serve as commercial sex workers in like manner. The major conduits are the infamous Makwanpur alley, Birtamod in the Eastern Region and Nepalgunj in the Far Western region. The Nepali girls and young women aged between 12-29 years old are sold through Nepalese and Indian commercial sex agents finally ending up in the sex outlets in bigger Indian cities such as Mumbai, New Delhi, Bangalore and Kolkata involving nearly three to four middlemen like Tirtha Ram. Most girls who are impoverished in poverty until the ages of 12-16 years are booked in advance by their parents for as little as US $200 to the agents, the prettier girls fetch between US $300-400 according to reports from independent Nepalese survey on child and women trafficking and organizations such as Asia Foundation and Human Rights Watch Asia which have stepped in the forefront of trying to stop the crime. Usually, the girls are transported in a group of 10-15 across the porous border to the various Indian cities. This is happening every day as Ind0-Nepalese border is a porous one and has been serving child traffickers for nearly one a half decades now with few interruptions. Also, in the absence of a strong government in Kathmandu, due to the failing policies of the seven party coalitions that rules Nepal at present; even the gravest crime goes unpunished. For more than a decade, some of Nepal´s top legal experts have been drawing the UN and the world´s attention to the child trafficking issue occurring between India and Nepal. Well known Nepalese legal eagles such as Dr. Shanta Thapaliya, Shambu Thapa (former Chairman of Nepal Bar Association), and Sapana Pradhan Malla who all are child rights advocates, Believe the Constitution of Nepal has guaranteed the right of equality to women including property and self-development rights, but offers very little practicing equality. Mr. Gauri Pradhan who has been running CWIM for more than three decades in Kathmandu, dedicated to Child Welfare and education of street children also is in agreement that child rights has been perhaps forgotten as core area of understanding in Nepalese human rights practice. The Nepalese Constitution has also accorded childhood freedoms to every Nepali girl child since Nepal was one of the first countries to sign the Convention on the Rights of him Child, 1990, but the real achievement in realizing child rights in Nepal is next to nil, despite the claims of various international agencies. The truth, according to the Harvard educated Dr. Thapaliya. In a recent anti trafficking report appears to be that in Nepal women have long been discriminated upon when they are known to contribute to nearly 60% of the country´s Gross Development Product. The government has simply been turning a blind eye to the issue of women trafficking and child prostitution. Thus many legal voices in Nepal and also many powerful NGO leaders in India are now jointly trying to coordinate efforts and draw on the ethical argument that children should be given all the time until age 16 to enjoy their childhood freedoms, while the traffickers should be punished severely with imprisonment, not only meager fines. Nepal, which had faced an internal civil conflict between 1986-2006, has seen a big stream of its children, particularly in Western Nepal, facing commercial exploitation through middle men in being transported to brothels in various Indian cities. Not only have these young girls ended up in Indian circuses and households as bonded servants, many have ended up working as life long commercial sex workers. Some graduate in a decade or two to become brothel owners themselves, employing between 7 to a dozen young Nepalese females in each commercial sex venue. In 2007, various Indian and Nepalese estimates put the total number of Nepalese commercial sex workers in India at around 200,000 to 300,000, though this is considered a low estimate. Nearly half of the women in Mumbai, who ply commercial sex work totaling 120,000, are estimated to be Nepalese, a cording to various ILO estimates. The women are not only subjugated to various forms of torture, gang rape and different sexual acts, they face the risk of contracting HIV/AIDS openly. According to recent available posted on BBC, HIV infection may have increased by more than 100 percent among Nepalese women and by 200 percent among children in the past 18 months. This has also been substantiated by several NGO officials working to bring relief to the Nepalese women in Mumbai and Bangalore. Nearly 18% of the customers also happen to be migrant Nepalese workers in India close to the cities who visit the brothels on weekends. The Nepalese government´s National Center for AIDS/STI Control publishes figures regularly on the number of HIV/AIDS case occurring in Nepal. But these figures are considered diminutive based on the actual number infected, particularly those forced to return to Nepal from Mumbai, New Delhi and Kolkata after contracting HIV/AIDS. For instance, the Nepal Government released figures that nearly 2200 housewives were infected with HIV in 2007, but the figure could be more as there is stigma and discrimination attached to revealing one´s HIV status in Nepalese society and this does not include the HIV/AIDS infected women who have been returned from Indian brothels. This is a serious problem that is also not reflected accurately in the various sentinel surveys on cross border sex trafficking between Nepal and India. The Nepalese government states that the number of children infected with HIV reached 428 from 138 in 2005, but the actual reality is, more than 2,500 known infections are recorded in various hospitals and clinics throughout Nepal in the same period. The alarming fact is that among the Nepali women trafficked to India and forced into the sex trade, nearly 40 percent of them were HIV positive by the time they were repatriated, US researchers have verified. Human Rights Watch has published an explicit report outlining the plight of Nepalese women who have been trafficked to India and exploited for commercial sex work there and abroad. The main cause of this inhuman crime seems to be the impoverishment of Nepalese women which forces their parents to marry them off to middle agents or else to sell them off for the remaining families´ survival at an early age. Another finding coming from a small study of 287 Nepalese women who found their way home after years of sex slavery in India's brothels, underscored the challenge facing public health authorities as they battled to contain India's HIV epidemic and prevent it from spreading throughout the region. Nearly 90% of them were infected with HIV, far more than the 40% figure guess estimated by various international media channels! According to Jay Silverman, Associate Professor of Society, Human Development, and Health at Harvard School of Public Health speaking to the BBC recently, "The high rates of HIV we have documented support concerns that sex trafficking may be a significant factor in both maintaining the HIV epidemic in India and in the expansion of this epidemic to its lower-prevalence neighbors." India already has 2.3 million people living with HIV/AIDS, more than any other country in the world except South Africa and Nigeria, and is also a major hub for sex workers from across the region, such as Nepal and Bangladesh. Lacking formal employment, the tide of poor Nepalese women willing to provide these services seems to go unchecked. Currently Nepal is rehabilitating itself after an 11 year old civil conflict that left nearly 13,600 people dead. However with the current national infection numbers hovering anywhere between 80,000 to 120,000 more than 17,000 are expected to die each year throughout the coming decade due to HIV/AIDS related infections. Nepal earlier had traditionally very low rates of HIV/AIDS infection at less than 300 per 100,000 but now it cannot be sure it will remain the same for the rest of this decade. Many returning commercial sex workers sent back from various Indian cities in turn marry back into their villages, whether projected government figures are accurate or belie the truth. Many of the women are also giving birth to HIV infected children and continue engaging in commercial sex work in Kathmandu, Biratnagar, Janakpur, Pokhra, Nepalgunj, Bhairawa and Birtamod among major townships. Both the World Bank and UNAIDS officials have warned that the cross-border sex trade presents a potential public health threat to Nepal, although there has been very little data or action to show what's happening on the ground. This all paints a highly disturbing picture of young women and girls being forcibly introduced to commercial sex work outside of Nepal with high rate of HIV infections, and many dying of AIDS. It is important for donors and international non profit institutions working in Nepal and helping the Nepalese overcome the post-conflict rehabilitation efforts to understand the depth of this problem. An increase of HIV infections burdens not only society, but develops astronomic health expenditure in their care and support, something a poor country like Nepal cannot afford. Thus, trafficking of women and children to India and South Asia from Nepal has fuelled in a very dangerous HIV/AIDS prevalence scenario throughout the South Asian continent, where the women infected with HIV have to bear a sad plight of being left untended and uncared for. USAID has pointed out that poverty is still the fundamental problem that underlies all trafficking in Nepal. Due to the prevailing poverty, most Nepalese girls are illiterate and easily lured by the tiny attractions of work, higher salaries, easy life, and promises of a foreign job. This is now beginning to take its toll on the Nepalese women´s lives eventually having to face the threat of carrying HIV infections in working in India. This creates a larger problem of HIV spreading more rapidly through Nepalese society, where efforts at HIV/AIDS impact mitigation show a lack of concrete national planning and realization on the need to do something more urgently. In fact, both the governments of India and Nepal have strong legal guarantees against the trafficking of women and young girls and even consider it a heinous crime. Both governments have signed most of the international statutes that deal with halting global trafficking of human beings particularly the UN, ILO and other abiding international treaties. Both governments recognize that this form of trafficking is slavery and serfdom, in short, another form of forced labor as during the Second World War. International donors have even put conditions on Nepal, since it is a party to various international legal instruments to put in concrete efforts to halt the trafficking of Nepalese women and young children in promises of more aid and assistance, but it is the scrupulous middlemen and not government that is the main problem here. It is nevertheless a moral obligation of the Nepal Government to adopt all necessary and effective measures to stop these cross-border activities. =============================================================== 3. Lack of kits halt test at HIV centres The Times of India, February 16, 2008. http://timesofindia.indiatimes.com/Mumbai/Lack_of_kits_halt_test_at_HIV_centres/articleshow/2786937.cms MUMBAI: Less than two months after the World Bank exposed frauds in the implementation of the National AIDS Control Programme (NACP II), the project has run into fresh trouble. This time around, there is a major shortage of basic HIV-testing kits in the city’s walk-in HIV-testing centres. The centres - called the Integrated Counselling and Testing Centres (ICTCs) - provide free testing and counselling for HIV, but the current shortage is resulting in people being turned away from the 75 centres in the city. On Friday, TOI visited Sion Hospital’s walk-in centre, which wore a deserted look. Chembur resident Saiba Sheikh (name changed to protect identity) who was advised an HIV test as part of her gynaecology treatment, was told to return after eight days as the kits were out of stock. Calls made to several ICTCs in the suburbs and the rest of Maharashtra yielded the same response. The shortage began a fortnight ago. Doctors at ICTCs in major civic hospitals such as KEM, Sion and Nair hospitals received a notice from the Mumbai District AIDS Control Organisation (MDACS) on February 1, saying that “there is an acute shortage of HIV-testing kits (rapid 1) which are supplied by National AIDS Control Organisation (NACO)’’. MDACS is the local body of NACO. The notice further said that the centres should postpone collection of blood samples from people in view of the shortage. "Such frequent non-availability of kits makes people lose faith in our centres. Besides, many of the people coming here are already under stress and it is unfair to make them wait," said a civic doctor. TOI had in its December 20 edition reported a temporary shortage, which arose in four centres in December 2007. Nearly 600-900 patients approach an ICTC in major hospitals every month and persons should ideally get their reports within 48 hours. MDACS chief Dr Nirupa Borges told TOI that her office had informed the NACO about the shortage of the first rapid test kits "in good time". Denying that all the centres had run out of stock, she said, "We are in constant touch with NACO officials who are in the process of providing kits. We received some stock from them just 2-3 days ago, which we have distributed to centres. We don’t have the power to procure these kits." ICTC staffers, however, said MDACS had asked them to stop testing samples "till further notice" and also said that they haven’t received any further intimation since the February 1 notice. Dr Sujatha Rao, who heads NACO, was out of the country and unavailable for comment. However, Vijay Kumar Reehl, under-secretary of NACO’s financial and procurement division said, "We had placed orders for the kits with two companies and the kits have now gone for inspection before we supply them to the field." He attributed the delay to "administrative procedures". Admitting that such a shortage should not arise, he said that the NACO had supplied 2 lakh interim kits all over the country, but the regular supply was likely to start by next week. The current lapse comes close on the heels of a World Bank report released in December 2007, which revealed shocking findings of corrupt and fraudulent practices in the NACP-II. About test kits, the bank had questioned MDACS’s move to award contracts to a particular company, Monozyme, though the company’s bids were 'non-compliant with the contract's specifications'. The WB review also exposed lapses in the selection of NGOs, following which NACO has recently taken action. =============================================================== 4. Two years on, AIDS bill yet to get nod MSN.com, February 16, 2008. http://news.in.msn.com/national/article.aspx?cp-documentid=1246144 Moga: Thousands of people with HIV infection have lost jobs, been thrown out of homes and been refused treatment, waiting for government bureaucracy to clear the final draft of the HIV/AIDS Bill in Parliament. ''The Bill has been pending with the Centre for almost two years. We want the Bill to be tabled in the budget session of Parliament as promised by the Government.People living with HIV are being thrown out of jobs and denied treatment even in government medical colleges and these discriminatory issues cannot be addressed unless we have constitutional backing,'' says Naresh Yadav, vice-president of the Indian Network of People living with HIV/AIDS (INP+). The Bill has provisions to protect HIV-positive women and children, who are more vulnerable to discrimination. According to the Bill, there should be no mandatory pre-marital testing but compulsory registration of marriage becomes a must to give women the right to live in their marital home. In the case of AIDS orphans, older siblings should be recognized as a guardian to keep the family intact. Although India has a National AIDS Prevention and Control Policy, it does not have the status of law and so is not binding and enforceable in court. "If a private hospital refuses treating a person infected with HIV, they cannot seek legal recourse. The HIV/AIDS Bill aims to empower people to protect themselves and others from HIV/AIDS," says Denis Broun, country coordinator, UNAIDS. Drafted by the Lawyers Collective to prevent and control HIV while protecting the rights of those infected with HIV, the final draft of the bill was submitted to the Union Ministry of Health in August. =============================================================== 5. INC gets 33 m Dollar world funding to fight AIDS Deccan Herald, February 16, 2008. http://www.deccanherald.com/DeccanHerald.com/Content/Feb162008/state2008021652679.asp?section=updatenews The Indian Nursing Council (INC) will soon get USD 33 million Global Fund to impart focussed training to one lakh nurses in the treatment of HIV/AIDS affected patients in the country. Mr T Dileep Kumar, President of INC and Nursing Advisor, GOI, Speaking to reporters after addressing a national conference on 'Theory and Application in Nursing Practice, has said that the Geneva based Global Fund to fight AIDS, Malaria and Tuberculosis (GFAMT) had come forward to fund the programme. Fiftyfive nursing institutions had been identified for the purpose and one lakh nurses would be given specialised training in treating people with HIV/AIDS, apart from Malaria and TV. "Counseling is very important in treating people with AIDS and we want to create a big contingent of nurses. We want these health workers to master the treatment of Anti Retroviral Therapy, which is commonly used to treat HIV patients. We plan to train at least 15,000 nurses every year for the next five years under the programme," he said. INC had begun work on launching the first National Institute of Nursing at Thambaram in Chennai specialising in treatment of HIV/AIDS. It would be a self sustaining institute which would reserve 25 per cent of seats to foreign students that would take care of costs of running the institute. "South Africa, which has one of the highest incidence of AIDS in the world, is sending large number of students to the US for training in treatment of AIDS. We can invite students from foreign countries," he said. Mr Kumar said INC had taken another initiative to set up a Centre of Excellence in Nursing in each state with a funding of Rs 20 crore for every centre. Post graduate courses would be launched in each of these centres besides inviting thousands of staff nurses to undergo continuous education programmes, he said. He agreed that many of the private nursing schools lacked proper infrastructure and the education standard remained sub standard. "The State Nursing Councils should act as watch dogs and set stringent norms while according sanction to such schools. The INC is responsible for prescribing syllabus and norms for setting up clinical infrastructre facilities. The states should act tough against the erring schools," he said. Former ISRO Chief and Rajya Sabha member K Kasturirangan said states like UP, Bihar, Orissa MP and Rajasthan faced acute shortage of nurses. There there were nine lakh registered nurses in various state nursing councils, only 3.6 lakh of them were actually active. According to Health ministry estimates at the end of the 11th plan India would require 10.43 more nurses, a number that current infrastructure would be unable to meet, he added. =============================================================== 6. ‘Table AIDS Bill in budget session’ The Hindu, February 16, 2008. http://www.hindu.com/2008/02/16/stories/2008021657651300.htm NEW DELHI: The Indian Network for People Living with HIV/AIDS (PLHIV) has urged the government to table the long-pending HIV/AIDS Bill in the budget session of Parliament. It will hand over a letter containing 20,000 signatures in support of the proposed legislation to the Prime Minister’s Office next Monday. At a press conference here on Friday, PLHIV activists and Lawyers’ Collective representatives said the proposed legislation would help address the issue of discrimination and protect the HIV-positive people’s rights. The final draft was prepared in August 2006 and since then the Bill had been lying with the Union Law Ministry. Instances of discrimination against the HIV-positive people are commonly reported in different spheres of public service such as healthcare settings, discouraging them from accessing testing and treatment services. “Discrimination on the basis of HIV status is in direct contrast to the public health strategy for protecting and promoting the rights of those infected and affected by HIV,” Dennis Broun, country coordinator, UNAIDS, told reporters. “The Bill is based on the rights perspective and aims at preventing and controlling the spread of the epidemic while protecting the rights of those infected and affected by the diseases,” said Anand Grover, director of the Lawyers Collective (HIV/AIDS unit). =============================================================== 7. Breaking the silence The Hindu, February 17, 2008. http://www.hindu.com/mag/2008/02/17/stories/2008021750100400.htm The Red Ribbon Express spreads the message of HIV awareness, prevention, countering stigma and life after HIV around the countryside. The train is painted a cheerful sunshine yellow with a hint of blue and red. The tagline says “Uniting India Against AIDS. Zindagi Zindabad”. ‘Celebrate Life’ is an appropriate tagline for the train that communicates the compl exity of HIV: Everyone is vulnerable, yet it is preventable. HIV is not about morality; countering stigma against people living with HIV is integral to HIV prevention. It is day 42 since the Red Ribbon Express was flagged off from New Delhi Railway Station on December 1, 2007. It has just entered Lucknow where it will halt for two days. It receives a jubilant welcome. Local NGOs have set up a small exhibition space around the platform. It is mid-morning and the queues are getting longer. Young men are in majority. The train is attractive, looks interesting, and curious crowds are growing. The energy is youthful. Those in the driver’s seat — quite literally — are young people themselves. Mohan Singh Rana, CEO of the Red Ribbon Express who will be on board through its journey, is all of 27. Nehru Yuva Kendra’s volunteers play a critical role in outreach and mobilisation, as they travel in the train and at every halt go cycling into nearby villages spreading HIV awareness through nukkad nataks and skits. Daunting scale One year, 22 States, 70,000 km: The sheer scale of the project is overwhelming. During the course of its journey, the train will criss-cross the length and breadth of the country making 180 halts (in 180 districts), language changing 11 times over, before it returns to New Delhi on December 1, 2008. Like a messenger of peace and goodwill, the train brings HIV information wherever it goes. From touch-screen to bicycle, it uses a synergy of technology and interpersonal communication to reach out. It has daunting challenges to meet. For one, HIV is a complex issue with many links — science, women’s vulnerability, reproductive health, sexuality, migration… The country is diverse with dialects changing every few 100 miles. The audience is varied — men, women, urban, rural, literates, neo-literates. And yet, there is something about the sheer spirit and energy that seems to bring everything together. According to CEO Rana, an average of 3,000-4,000 people visit the train each day. The response has been overwhelming. Communication design The first three coaches containing the exhibition use a communication style that is highly interactive packaged as infotainment. The touch-screen games, audiovisuals, interactive models make the exhibit extremely attractive to a young audience. There are music videos and PSAs (public service advertisements) featuring youth icons, actors and cricketers. There is basic information: What is HIV, how it spreads, how to protect oneself. A map shows HIV prevalence across States and districts and national response to the epidemic. There is information on the National Rural Health Mission; HIV and reproductive health, why pregnant women should test for HIV. UNICEF and ad agency JWT have ensured that communication is simple without being simplistic; no small challenge when it comes to an issue as complex as HIV. K. Beena, UNICEF, Lucknow, explains that as the train travels across the country, the visuals will remain the same while the language changes 11 times over. “That is why we ensured the visuals have faces representing different parts of the country,” she says. There is no reference to high-risk groups, perhaps to consciously emphasise that everyone is vulnerable and not only certain population groups. A coach designed as a 60-seater auditorium is meant for in-depth training for cohesive groups such as healthcare providers and elected representatives. Male/female doctors and counsellors are also on board. The live training sessions are designed for a cohesive group — doctors, district officials, teachers... The intention is that, as leaders, these people become more aware and can further ignite HIV awareness among the communities they work with. The live nature of the training helps dispel doubts. Easily the most powerful part of the training is an experience shared by an HIV positive speaker who represents the State network of people living with HIV. In Lucknow, a confident 30-year-old Radha, President of the Faizabad Network, spoke of losing her son and husband to HIV, being thrown out of in-laws’ home and how the Network supported her. The survivor of many battles says she is committed towards HIV awareness and prevention, and dispelling fears in people’s minds because “I don’t want anyone else to go through what I had to go through.” Radha’s share reminds me of Ashok Pillai, one of the pioneers among positive leadership in India, when he pointed out years ago “Unless people meet those with HIV how will they believe the problem is real?” Audience response Young people show an enthusiastic response; the tech-savvy nature of the exhibits is clearly working well. A group of young college girls said they were inspired and moved by Radha’s experience and sharing. As NSS volunteers, they have been part of HIV awareness programmes themselves. There were students and researchers interested in the issue: A young man pursuing a diploma on HIV; another doing a research on opportunistic infections. A young woman from Dimapur working with an NGO in Gorakhpur was glad to know the language will change when the train reaches the North-east. Women were remarkably few and far between. One woman said she came with a male member of the family. She’s fascinated and excited; this was all new to her. And yes, she says, women don’t come on their own; they hesitate. Meanwhile, a train stops on the next track and young men, barely 20, en route to Rae Bareilly cross the platform and wander in. Clearly, the audience is diverse — from those working on the issue and associated with it, to college students, to the wanderer. There’s something for all. Spreading the word The train is an interesting partnership between various ministries and departments such as National AIDS Control Organisation, the Railways, Youth Affairs. Various colleges, women’s groups and departments have been mobilised to encourage people to attend the exhibition. While the train is stationed on the platform, a range of activities happen across the district. At every halt, NYK volunteers cycle to neighbouring villages in teams of 6-8, each team covering four villages a day doing nukkad nataks and skits. Where the train halts for more than a day, cyclists spend the night in the village. More than 43,000 villages will be covered through the year. In addition, there are two buses with a mobile exhibition covering the district’s periphery. Rana says managing crowds at the platform sometimes becomes a challenge. The coaches have a limited capacity, viewing exhibits require time and attention. At some places such as Pratapgarh in Uttar Pradesh the response was so good he extended closing time from 5.30 pm to 8 pm. “But I cannot do it at every halt — we have to run 366 days,” he says. Perhaps platform activities need to be such that learning begins even as people begin to queue. At Lucknow, there were very few women visitors. Most came as part of a group from a college; while some came accompanied by male relatives. The train may need to examine if the majority male crowd discourages women from coming by themselves. Perhaps a reserved viewing time for women may be required at some halts. The train is presently travelling across the Hindi belt. Crossing Rajasthan, Madhya Pradesh, parts of Maharashtra and Chattisgarh, it is presently in Uttar Pradesh. From here, it heads to Uttaranchal, Jharkhand, and Bihar before reaching Guwahati on March 8, when the language will change for the first time to Assamese. Twenty-two years into the epidemic in India, and people across quarters are finally talking about HIV. The silence is broken. It’s a big step. =============================================================== 8. More HIV-Infected Couples Tying The Knot In India Bernama, February 17, 2008. http://www.bernama.com.my/bernama/v3/news_world.php?id=314392 CHENNAI: HIV-positive sufferers who have been socially isolated because of the stigma attached to them, are not enduring their traumatic life in loneliness anymore. They are beginning to lead a new life by marrying a partner with similar conditions. Such marriages are on the increase in high-risk districts like Namakkal, about 400km from here. In South India, marriages among couples with HIV are becoming a trend and at least 300 of them have tied the knot in Andhra Pradesh, thanks to the effort by the Telugu Network of Positive People. "These marriages help limit the spread of the disease, provide security to the affected females and moreover give companionship to the couple. "The HIV affected people meet their partners in government hospitals that give antiretroviral therapy to extend longevity," said A.B. Antony Jennit, a psychologist from the Tamil Nadu Dr M.G.R. Medical University. India has nearly 2.5 million HIV/Aids patients and about 70,000 children suffer from the disease which destroys the human immune system. Widespread discrimination against HIV infected people is still prevalent in India and as a result many live in isolation without access to decent healthcare. Last year in Meerut, Uttar Pradesh, a HIV-positive woman was forced to deliver her baby outside hospital as the doctors failed to attend to her and this triggered a strong protest from civil rights groups. On condition of anonymity, a newly married HIV-infected woman told Bernama that she decided to marry for the sake of her children and to escape the social trauma. "I lost my husband at a very young age because of HIV and he also transmitted it to me. Often, I was ostracised by my in-laws and life was miserable. "So, I decided to marry again and it is the best option for me and my children," she the woman whose deceased husband worked as a truck driver in Namakkal. Andhra Pradesh has nearly 500,000 HIV infected people, mostly villagers in the coastal areas. In Namakkal, 20 percent of its 53,000 population have been affected by the virus and the prevalence of HIV among pregnant women is about three percent in the district where men mostly eked out as truck drivers. =============================================================== 9. Free medicines, transport is all they want for battle against HIV Express India, February 18, 2008. http://www.expressindia.com/latest-news/Free-medicines-transport-is-all-they-want-for-battle-against-HIV/274249/ Chandigarh: Members of the People living with HIV/AIDS, a centre for the AIDS infected people that is being managed by the State AIDS Control Society, Chandigarh, are fighting a lone battle for medical and other facilities that are quite expensive for the families enrolled with the centre. The centre was started on September 2, 2005, and has so far, around 300 odd families enrolled with it. The centre has been working towards providing relief to the AIDS infected people in the form of providing free medication, spreading awareness and safeguarding their social as well as legal rights. Although the National AIDS Control Organisation (NACO) provides free medicines to the affected, affording baseline test that includes blood count test, haemoglobin test, continues to be a problem for the patients. Besides this, patients demand provision of free transportation service; for they are unable to bear heavy transportation cost and thus avoid the treatments. The Viral Detect Test that the patients need to undergo is also quite expensive and is not funded by the NACO because it provides free medicines only under the Anti-Retro Viral Therapy (ART). Moreover, NACO provides medicines on the basis of blood count. In some cases the HIV positive patients do not have a low blood count and therefore are not considered for a free treatment. “It is the shortage of funds that hampers the work of this society. Although a PIL demanding facilities such as baseline tests and transportation has been filed but it is still pending,” said Pooja Thakur, the president of Chandigarh Network of People Living with HIV AIDS. Veena Sharma of Human Rights Law Network said that another petition called as PUCL vs Union of India was pending with the Supreme Court, which demands the HIV infected people must be issued Below Poverty Line (BPL) cards to avail free medication. The patients also demand setting up of separate institutions to rehabilitate the affected women and children. “The HIV affected people need special care that cannot be provided at Bal Sudhar Kendra’s or Naari Niketans, where they are sent,” said Sharma. When contacted, director of the State AIDS Control Society Dr Vanita Gupta said that there was no dearth of funds and the affected people were being provided the required aid free of cost. On baseline tests, she added that patients have to bear the costs and only BPL families are exempted from paying for these tests. Commenting on the provision of free transport facility, she said that since relief centres were already functioning in places like Simla, Amritsar , Rohtak and Patiala, therefore, there was no need to deport patients to the Chandigarh centre. “Why should Chandigarh bear the economic burden of these patients? Since we have centres all over India, the patients can avail the relief in these centres,” said Gupta. Commenting on the provision of free medicines for second line treatment, Dr Gupta said, “Very few people have undergone this process so far, but still on case to case basis we try to provide as much relief as we can.” =============================================================== Disclaimer: Opinions expressed in the above articles are those of the respective newspapers, not those of SAATHII.